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“我无法忍受他可能认不出我的想法”:个人叙事作为在线阿尔茨海默病支持小组中身份认同工作的场所

‘I cant bear the thought that he might not recognise me’: Personal narratives as a site of identity work in the online Alzheimer’s support group.

作者信息

Kruk Bartłomiej

出版信息

Commun Med. 2015;12(2-3):273-86. doi: 10.1558/cam.18453.

Abstract

Narrative of personal experience, as a subjective interpretation of a set of events, constitutes a particularly fertile site for the construction of identity. It enables the teller to voice and (re-)organize disruptive phenomenological experiences, socialize emotions or forge interpersonal relations. Consequently, the narrator is able to access various facets of their identity and ‘bring multiple, partial selves to life’ (Ochs and Capps 1996: 19). Informed by the methods and insights of computer- mediated discourse analysis, conversation analysis and membership categorization analysis, and positioning narrative as a situated practice within social interaction, this paper scrutinizes publicly accessible data (15 forum threads) nested within a UK-based online Alzheimer’s support group to demonstrate how Alzheimer’s patients’ family caregivers co-construct their sense of self when disclosing morally delicate aspects of their identities. The analysis demonstrates that the discursive space of the online support group encourages caregivers to disclose disruptions of predicates and activities associated with the ‘family’ membership categorization device. It also shows that the medium-afforded mode of engagement enables caregivers to gradually incorporate their unveiled aversive experiences into their autobiographical flow, with the help of other participants’ responses which normalize these category disruptions.

摘要

个人经历的叙述,作为对一系列事件的主观诠释,构成了身份建构的一个特别丰富的场所。它使讲述者能够表达并(重新)组织具有破坏性的现象学体验,使情感社会化或建立人际关系。因此,叙述者能够触及自身身份的各个方面,并“让多个部分的自我鲜活起来”(奥克斯和卡普斯,1996:19)。本文以计算机介导话语分析、会话分析和成员分类分析的方法与见解为依据,将叙述定位为社会互动中的一种情境化实践,审视了英国一个在线阿尔茨海默病支持小组中的公开可用数据(15个论坛主题帖),以展示阿尔茨海默病患者的家庭护理者在披露其身份中道德敏感的方面时如何共同建构自我意识。分析表明,在线支持小组的话语空间鼓励护理者披露与“家庭”成员分类装置相关的谓词和活动的中断情况。分析还表明,这种媒介提供的参与模式使护理者能够在其他参与者将这些类别中断情况正常化的回应的帮助下,逐步将其揭示的厌恶体验融入到他们的自传流中。

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