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成年痴呆症患儿照料者生活写作中的“旅程”

'Journeys' in the life-writing of adult-child dementia caregivers.

作者信息

Zimmermann Martina

机构信息

Department of Pharmacology, School of Pharmacy, Biocentre N260, Goethe University Frankfurt, Max-von-Laue Str. 9, 60438, Frankfurt am Main, Germany.

出版信息

J Med Humanit. 2013 Sep;34(3):385-97. doi: 10.1007/s10912-013-9233-9.

Abstract

This article explores how Alzheimer's disease caregivers struggle under the impact of a parent's memory loss on their own personality. In particular, it analyses how caregivers perceive and, thus, present their experiences of the ever intensifying caregiving activity in terms of a 'journey'. In doing so, this work takes into account both the patient's continuing bodily as well as cognitive decline and its intricately linked influence on the caregiver's physical and emotional stability. Equally, this study investigates how caregivers portray memory loss, and how their portrayal fits into our conceptualisation of illness narratives and the culture of autobiographical writing.

摘要

本文探讨了阿尔茨海默病患者的照料者在父母记忆丧失对其自身性格产生影响的情况下是如何挣扎的。具体而言,它分析了照料者如何看待并进而将他们日益繁重的照料活动经历描述为一段“旅程”。在此过程中,这项研究既考虑了患者身体和认知能力的持续衰退,以及这种衰退对照料者身体和情绪稳定性的复杂关联影响。同样,这项研究还调查了照料者如何描绘记忆丧失,以及他们的描绘如何融入我们对疾病叙事和自传写作文化的概念化之中。

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