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信息、宣传和引导作为对高功能自闭症谱系障碍成人的低水平支持:来自英国的一个例子。

Information, Advocacy and Signposting as a Low-Level Support for Adults with High-Functioning Autism Spectrum Disorder: An Example from the UK.

机构信息

Centre for Health Promotion Research, Leeds Beckett University, Rm. 512 Calverley Building, City Campus, Leeds, LS1 3HE, UK.

Institute for Health and Wellbeing, Leeds Beckett University, Leeds, UK.

出版信息

J Autism Dev Disord. 2018 Feb;48(2):511-519. doi: 10.1007/s10803-017-3331-x.

DOI:10.1007/s10803-017-3331-x
PMID:29063482
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5807481/
Abstract

'Low-level' support is championed to support adults with high functioning autism spectrum disorder (HFASD) to achieve good quality health and social care, yet research in the area is sparse. Drawing on semi-structured interview data, this paper considers the efficacy of an intervention to provide low-level support to adults with HFASD with little or no funded support. The intervention led to a number of perceived positive outcomes for adults with HFASD, their families, and service providers in the city, including increased access to education, volunteering, support and information, socialising, improved health and wellbeing, and managing day-to-day. Although many of life's difficulties still persisted, the intervention helped service users overcome barriers to availing further support, possibly leading to beneficial outcomes down the line.

摘要

倡导提供“低水平”支持,以帮助高功能自闭症谱系障碍(HFASD)成年人获得高质量的医疗和社会关怀,但该领域的研究却很少。本文基于半结构化访谈数据,探讨了为几乎没有获得资金支持的 HFASD 成年人提供“低水平”支持的干预措施的效果。该干预措施为 HFASD 成年人及其家庭以及城市服务提供者带来了许多积极的结果,包括增加了接受教育、志愿服务、支持和信息、社交、改善健康和福祉以及管理日常生活的机会。尽管生活中的许多困难仍然存在,但该干预措施帮助服务使用者克服了获得进一步支持的障碍,这可能会带来有益的结果。

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