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高功能自闭症谱系障碍(HFASD)青少年母亲的生活质量。

Quality of Life among Mothers of High Functioning Autism Spectrum Disorder (HFASD)Adolescents.

机构信息

Centre for Research in Psychology and Human Well-Being, Faculty of Social Sciences and Humanities, The National University of Malaysia, Bangi 43600, Malaysia.

Department of Community Health, Faculty of Medicine, Universiti Kebangsaan Malaysia, Jalan Yaacob Latif, Bandar Tun Razak, Cheras, Kuala Lumpur 56000, Malaysia.

出版信息

Int J Environ Res Public Health. 2022 May 30;19(11):6663. doi: 10.3390/ijerph19116663.

Abstract

Autism Spectrum Disorder (ASD) has become more prevalent globally. The disorder is predominantly characterised by low social skills noted explicitly in people with High Functioning Autism Spectrum Disorder (HFASD). The individuals usually possess a normal or superior intelligence quotient (IQ) but the disability impedes the achievement of their actual high potential, hence compromising their quality of life (QoL). Managing adversities encountered by children with HFASD often compromises the QoL of the entire family. Thus, this study aimed to identify specific domains of QoL among mothers of high-functioning autistic adolescents. The study assessed seven mothers of adolescents with HFASD using a semi-structured interview format. A thematic qualitative analysis was conducted to analyse the data. The results suggested that mothers perceived their QoL based on physical and emotional well-being, material well-being, interpersonal relationship, and environmental well-being. Intervention for HFASD is multidisciplinary, which targets a broad spectrum of symptoms and skills deficits and customises the programme to meet each individual's different needs. Nonetheless, intervention facilities in Malaysia are seriously limited, particularly in supporting QoL for children with HFASD. Therefore, by identifying the domains of QoL would improve the mothers' resilience in raising their children with HFASD.

摘要

自闭症谱系障碍(ASD)在全球范围内变得更为普遍。该障碍主要表现为社交技能低下,在高功能自闭症谱系障碍(HFASD)患者中表现得尤为明显。这些个体通常具有正常或较高的智商(IQ),但残疾妨碍了他们实际高潜力的实现,从而影响了他们的生活质量(QoL)。管理 HFASD 儿童所面临的困难常常会影响整个家庭的生活质量。因此,本研究旨在确定高功能自闭症青少年母亲的特定生活质量领域。该研究使用半结构式访谈形式评估了 7 名患有 HFASD 的青少年的母亲。采用主题定性分析方法对数据进行分析。结果表明,母亲根据身体和情绪健康、物质福利、人际关系和环境福利来感知自己的生活质量。HFASD 的干预措施是多学科的,针对广泛的症状和技能缺陷,并针对每个个体的不同需求定制方案。然而,马来西亚的干预设施严重受限,特别是在支持 HFASD 儿童的生活质量方面。因此,确定生活质量的领域将提高母亲在养育患有 HFASD 的孩子方面的适应力。

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