Burgun A, Bernal-Delgado E, Kuchinke W, van Staa T, Cunningham J, Lettieri E, Mazzali C, Oksen D, Estupiñan F, Barone A, Chène G
Yearb Med Inform. 2017 Aug;26(1):235-240. doi: 10.15265/IY-2017-034. Epub 2017 Sep 11.
To present the European landscape regarding the re-use of health administrative data for research. We present some collaborative projects and solutions that have been developed by Nordic countries, Italy, Spain, France, Germany, and the UK, to facilitate access to their health data for research purposes. Research in public health is transitioning from siloed systems to more accessible and re-usable data resources. Following the example of the Nordic countries, several European countries aim at facilitating the re-use of their health administrative databases for research purposes. However, the ecosystem is still a complex patchwork, with different rules, policies, and processes for data provision. The challenges are such that with the abundance of health administrative data, only a European, overarching public health research infrastructure, is able to efficiently facilitate access to this data and accelerate research based on these highly valuable resources.
介绍欧洲在将健康管理数据用于研究方面的情况。我们展示了北欧国家、意大利、西班牙、法国、德国和英国开发的一些合作项目和解决方案，以促进为研究目的获取其健康数据。公共卫生研究正在从孤立的系统转向更易获取和可重复使用的数据资源。以北欧国家为榜样，几个欧洲国家旨在促进将其健康管理数据库用于研究目的。然而，该生态系统仍然是一个复杂的拼凑物，在数据提供方面有不同的规则、政策和流程。挑战在于，尽管有大量的健康管理数据，但只有一个欧洲的、总体性的公共卫生研究基础设施，才能有效地促进对这些数据的获取，并加速基于这些极有价值资源的研究。
