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本文引用的文献

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Data Sharing and Global Public Health: Defining What We Mean by Data.数据共享与全球公共卫生:界定我们所说的数据的含义
Front Digit Health. 2020 Dec 14;2:612339. doi: 10.3389/fdgth.2020.612339. eCollection 2020.
2
Methods to support evidence-informed decision-making in the midst of COVID-19: creation and evolution of a rapid review service from the National Collaborating Centre for Methods and Tools.支持 COVID-19 期间循证决策的方法:国家方法和工具协作中心快速审查服务的创建和演变。
BMC Med Res Methodol. 2021 Oct 27;21(1):231. doi: 10.1186/s12874-021-01436-1.
3
Exploring the local policy context for reducing health inequalities in children and young people: an in depth qualitative case study of one local authority in the North of England, UK.探索减少儿童和青少年健康不平等的地方政策环境:对英国英格兰北部一个地方当局的深入定性案例研究。
BMC Public Health. 2021 May 10;21(1):887. doi: 10.1186/s12889-021-10782-0.
4
Data Resource: the Kent Integrated Dataset (KID).数据资源:肯特综合数据集(KID)。
Int J Popul Data Sci. 2018 Apr 25;3(1):427. doi: 10.23889/ijpds.v3i1.427.
5
Improving data access democratizes and diversifies science.提高数据访问的民主化程度和多样性可以促进科学的发展。
Proc Natl Acad Sci U S A. 2020 Sep 22;117(38):23490-23498. doi: 10.1073/pnas.2001682117. Epub 2020 Sep 8.
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Transmission dynamics: Data sharing in the COVID-19 era.传播动力学:新冠疫情时代的数据共享
Learn Health Syst. 2020 Jun 28;5(1):e10235. doi: 10.1002/lrh2.10235. eCollection 2021 Jan.
7
How an electronic health record became a real-world research resource: comparison between London's Whole Systems Integrated Care database and the Clinical Practice Research Datalink.电子健康记录如何成为现实世界的研究资源:伦敦全系统综合护理数据库与临床实践研究数据链接的比较。
BMC Med Inform Decis Mak. 2020 Apr 20;20(1):71. doi: 10.1186/s12911-020-1082-7.
8
The hazards of smoking and the benefits of cessation: a critical summation of the epidemiological evidence in high-income countries.吸烟的危害和戒烟的益处:高收入国家流行病学证据的批判性总结。
Elife. 2020 Mar 24;9:e49979. doi: 10.7554/eLife.49979.
9
Are Synthetic Data Derivatives the Future of Translational Medicine?合成数据衍生物会是转化医学的未来吗?
JACC Basic Transl Sci. 2018 Nov 12;3(5):716-718. doi: 10.1016/j.jacbts.2018.08.007. eCollection 2018 Oct.
10
Health Data for Public Health: Towards New Ways of Combining Data Sources to Support Research Efforts in Europe.公共卫生的健康数据:探索整合数据源以支持欧洲研究工作的新方法。
Yearb Med Inform. 2017 Aug;26(1):235-240. doi: 10.15265/IY-2017-034. Epub 2017 Sep 11.

探索公众健康研究和服务委托的综合生活方式数据库的认知和可接受性:一项定性研究。

Exploring the perceptions and acceptability of an integrated lifestyle database for public health research and service commissioning: a qualitative study.

机构信息

School of Health and Social Care, University of Lincoln, Lincoln, UK.

School of Sport and Exercise Science, University of Lincoln, Lincoln, UK.

出版信息

Perspect Public Health. 2024 Jul;144(4):222-231. doi: 10.1177/17579139221136726. Epub 2022 Nov 15.

DOI:10.1177/17579139221136726
PMID:36377889
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11308271/
Abstract

AIM

Public health lifestyle databases at local authority level are currently poorly aligned across the UK. The integration of lifestyle databases at a regional level could provide a rich resource to support research and help inform public health leads and service commissioners in improving service delivery, facilitating decision-making and developing key public health policies. Prior to its implementation, the acceptability of an integrated lifestyle database should be explored. The aim of this study was to consult with public health stakeholders to explore the acceptability of developing and implementing a regional integrated lifestyle database across four key areas of public health: smoking cessation, diet, physical activity and alcohol consumption.

METHOD

Qualitative interviews were conducted with public health stakeholders recruited from across the East Midlands region of England. All interviews were conducted using video conferencing software and recorded, transcribed, and analysed using the Framework approach. Sixteen public health stakeholders were purposively identified and invited to participate in interviews.

RESULTS

Stakeholders viewed the integrated database as having potential to support research, service development and commissioning decisions. Barriers such as providers' reluctance to reveal their business strategies to rival organisations, cost of setting up and running the proposed database, complex information-sharing and governance were identified.

CONCLUSION

An integrated lifestyle database has the potential to support research and service commissioning regionally. However, several barriers were identified that must be addressed prior to the development and implementation of an integrated database.

摘要

目的

目前,英国各地的地方当局公共卫生生活方式数据库之间的一致性很差。在区域层面整合生活方式数据库可以提供丰富的资源,支持研究,并帮助告知公共卫生负责人和服务专员改善服务交付、促进决策制定和制定关键公共卫生政策。在实施之前,应该探索综合生活方式数据库的可接受性。本研究的目的是咨询公共卫生利益相关者,以探讨在四个关键公共卫生领域(戒烟、饮食、身体活动和饮酒)开发和实施区域综合生活方式数据库的可接受性:

方法

从英格兰东米德兰兹地区招募公共卫生利益相关者进行定性访谈。所有访谈均使用视频会议软件进行,并使用框架方法记录、转录和分析。有针对性地确定了 16 名公共卫生利益相关者,并邀请他们参加访谈。

结果

利益相关者认为该综合数据库有可能支持研究、服务开发和委托决策。确定了一些障碍,例如提供者不愿意向竞争对手组织透露其商业策略、建立和运行拟议数据库的成本、复杂的信息共享和治理。

结论

综合生活方式数据库有可能在区域内支持研究和服务委托。然而,在开发和实施综合数据库之前,必须解决几个已经确定的障碍。