Megges Herlind, Freiesleben Silka Dawn, Jankowski Natalie, Haas Brigitte, Peters Oliver
Department of Psychiatry, Charité-Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health (BIH), Berlin, Germany.
German Center for Neurodegenerative Diseases (DZNE), Berlin, Germany.
Alzheimers Dement (N Y). 2017 May 10;3(3):332-338. doi: 10.1016/j.trci.2017.04.004. eCollection 2017 Sep.
The user experience of persons with dementia and their primary caregivers with locating systems is not firmly established.
Eighteen dyads used a prototype locating system during 4 weeks. Primary outcome measures were ratings of usability, and product functions and features. Secondary outcome measures were caregiver burden, perceived self-efficacy, frequency of use, and willingness to purchase the prototype. Changes in scores between baseline (T) and end of testing period (T) were compared by performing independent and dependent samples correlations and descriptive statistics.
Seventeen dyads made up the final sample. Ratings of usability and product functions and features were fair, but usability ratings were significantly reduced after 4 weeks. Although the prototype was used infrequently by majority of the participants, most caregivers would be willing to purchase the prototype, with men more willing than women. No significant change in technological willingness, caregiver burden, or perceived self-efficacy was found between T and T. Perceived self-efficacy significantly negatively correlated with willingness to purchase the prototype after 4 weeks.
Results highlight the importance of including end users in the research and development phase of locating systems to improve the user experience in home dementia care. Necessary indications for further research are carrying out randomized controlled trials with larger, more representative samples and developing innovative software and hardware solutions.
痴呆症患者及其主要照护者对定位系统的用户体验尚未得到明确证实。
18对受试者在4周内使用了一个定位系统原型。主要结局指标是可用性、产品功能和特性的评分。次要结局指标是照护者负担、自我效能感、使用频率以及购买该原型的意愿。通过进行独立样本和相关样本相关性分析以及描述性统计,比较基线期(T)和测试期末(T)得分的变化。
最终样本由17对受试者组成。可用性、产品功能和特性的评分一般,但4周后可用性评分显著降低。尽管大多数参与者很少使用该原型,但大多数照护者愿意购买该原型,男性比女性更愿意。在T和T之间,技术意愿、照护者负担或自我效能感没有显著变化。4周后,自我效能感与购买原型的意愿显著负相关。
结果凸显了在定位系统的研发阶段纳入终端用户以改善家庭痴呆症护理用户体验的重要性。进一步研究的必要方向是开展更大规模、更具代表性样本的随机对照试验,以及开发创新的软硬件解决方案。