Department of Health & Wellness Design, Indiana University School of Public Health-Bloomington, Bloomington, Indiana, USA.
Indiana University Center for Aging Research, Regenstrief Institute Inc., Indianapolis, Indiana, USA.
Gerontologist. 2024 Jan 1;64(1). doi: 10.1093/geront/gnad026.
Informal (or family) caregivers to older adults with Alzheimer's disease or other related dementias (ADRD) could greatly benefit from innovative telecaregiving systems that support caregiving from a distance. The objective of this review is to better understand (a) who is involved in telecaregiving and their experiences; (b) the interventions currently available to support ADRD telecaregiving; and (c) the outcomes measured to assess the effects of ADRD telecaregiving interventions.
A mapping review was conducted by systematically searching MEDLINE, CINAHL, Embase, and PsycINFO for all works published in English from 2002 to 2022. References of included publications were searched to identify additional empirical publications for inclusion.
Sixty-one publications (describing 48 studies and 5 nonstudy sources) were included in the review. Currently available information on the demographics, experiences, challenges, and benefits of ADRD telecaregivers is summarized. We found that interventions to support telecaregiving could be classified into 7 categories of technological interventions and 3 categories of nontechnological interventions. Empirical studies on ADRD telecaregiving interventions investigated a variety of outcomes, the most prevalent being user experience.
We conclude that (a) the paucity of literature on telecaregiving does not allow for a comprehensive understanding of the needs and day-to-day activities of ADRD telecaregivers; (b) interventions developed to support ADRD telecaregiving may not fully meet the needs of caregivers or care recipients; and (c) there is insufficient rigorous research establishing the effects of telecaregiving interventions on key ADRD-related outcomes.
照顾老年痴呆症或其他相关痴呆症(ADRD)患者的非正式(或家庭)护理人员可以从支持远程护理的创新远程护理系统中大大受益。本综述的目的是更好地了解:(a)谁参与远程护理以及他们的经验;(b)目前可用于支持 ADRD 远程护理的干预措施;以及(c)衡量的结果来评估 ADRD 远程护理干预措施的效果。
通过系统地在 MEDLINE、CINAHL、Embase 和 PsycINFO 中搜索所有 2002 年至 2022 年发表的英文作品,进行了映射审查。搜索纳入出版物的参考文献,以确定其他纳入的实证出版物。
综述共纳入 61 篇出版物(描述了 48 项研究和 5 项非研究来源)。总结了目前关于 ADRD 远程护理人员的人口统计学、经验、挑战和益处的信息。我们发现,支持远程护理的干预措施可以分为 7 类技术干预措施和 3 类非技术干预措施。关于 ADRD 远程护理干预措施的实证研究调查了各种结果,最常见的是用户体验。
我们得出结论:(a)关于远程护理的文献很少,无法全面了解 ADRD 远程护理人员的需求和日常活动;(b)为支持 ADRD 远程护理而开发的干预措施可能无法完全满足护理人员或护理接受者的需求;(c)没有足够严格的研究来确定远程护理干预措施对关键 ADRD 相关结果的影响。