Connors Karol A, Mahony Lisa M, Morgan Prue
a Calvary Health Care Bethlehem , Melbourne , Australia.
b Physiotherapy Department, Monash University , Melbourne , Australia.
Disabil Rehabil Assist Technol. 2019 Jan;14(1):62-67. doi: 10.1080/17483107.2017.1396623. Epub 2017 Oct 28.
People with motor neuron sisease require adaptive equipment to enhance life quality. This study aimed to examine total and concurrent equipment items prescribed with phenotype consideration.
A prospective, observational consecutive cohort study was undertaken. Data regarding Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised, phenotype, symptom onset and Functional Independence Measure (inpatients only) was recorded. Equipment utilized was coded by therapist as: speech devices; transfer devices; mobility devices (including power wheelchairs); orthoses; activities of daily living equipment; assisted technology and home modification equipment.
Two hundred and seventy-three people with motor neuron disease participated, mean age 67 years, mean amyotrophic Lateral Sclerosis Functional Rating Scale-Revised score 32, a moderate level of disability. Equipment items per participant ranged from 0 to 20, median 5. The electric lift recliner chair was the most commonly used equipment item, used by 51.2% of the cohort. There was a statistically significant difference in equipment use between flail leg and bulbar (Md 11, 3 items, respectively; p = .005), and flail leg and cervical phenotypes (Md 11, 3.5 items respectively; p = .009).
People with motor neuron disease have high equipment needs to optimize quality of life. Information regarding phenotype relative to equipment requirement, and most frequently prescribed equipment items can assist health-care providers anticipate equipment needs, burden and intensity for those with motor neuron disease. Implications for rehabilitation People with motor neuron disease have high concurrent equipment needs. Electric recliner lift chairs are the most frequently prescribed equipment item by those with motor neuron disease. There is variation in concurrent equipment needs relative to motor neuron disease phenotype.
运动神经元病患者需要适应性设备来提高生活质量。本研究旨在检查考虑表型因素后所开具的设备总数及同时使用的设备项目。
进行了一项前瞻性、观察性连续队列研究。记录了有关肌萎缩侧索硬化功能评定量表修订版、表型、症状发作及功能独立性测量（仅针对住院患者）的数据。治疗师将所使用的设备编码为：言语设备；转移设备；移动设备（包括电动轮椅）；矫形器；日常生活设备；辅助技术及家庭改造设备。
273名运动神经元病患者参与研究，平均年龄67岁，肌萎缩侧索硬化功能评定量表修订版平均得分32分，残疾程度为中度。每位参与者使用的设备项目从0至20项不等，中位数为5项。电动升降躺椅是最常用的设备项目，51.2%的队列使用该设备。连枷腿型与延髓型患者在设备使用上存在统计学显著差异（中位数分别为11项和3项；p = 0.005），连枷腿型与颈髓型患者也存在统计学显著差异（中位数分别为11项和3.5项；p = 0.009）。
运动神经元病患者对设备有很高的需求，以优化生活质量。有关与设备需求相关的表型信息以及最常开具的设备项目，可帮助医疗保健提供者预测运动神经元病患者的设备需求、负担及使用强度。对康复的启示：运动神经元病患者对设备有很高的同时使用需求。电动躺椅升降椅是运动神经元病患者最常开具的设备项目。与运动神经元病表型相关的同时使用设备需求存在差异。
