患有多种疾病的成年人的经历：一项定性研究。
The experience of adults with multimorbidity: a qualitative study.
作者信息
Duguay Cynthia, Gallagher Frances, Fortin Martin
机构信息
Faculty of Medicine and Health Sciences, Université de Sherbrooke, Sherbrooke, Quebec, Canada.
Nursing School, Université de Sherbrooke, Sherbrooke, Quebec, Canada.
出版信息
J Comorb. 2014 May 28;4:11-21. doi: 10.15256/joc.2014.4.31. eCollection 2014.
BACKGROUND
Findings from several countries indicate that the prevalence of multimorbidity is very high among clients of primary healthcare. A deeper understanding of patients' experiences from their own perspective can greatly enrich any intervention to help them live as well as possible with multimorbidity.
OBJECTIVE
To describe the fundamental structure of adults' experience with multimorbidity.
DESIGN
A phenomenological study was undertaken to describe the experiences of 11 adults with multimorbidity. These adults participated in two semi-structured interviews, the content of which was rigorously analyzed.
RESULTS
At the core of the study participants' multimorbidity experience are the impression of aging prematurely, difficulties with self-care management, and issues with access to the healthcare system, which contribute to the problem's complexity. Despite these issues, participants with multimorbidity report attempting to take control of their situation and adjusting to daily living.
CONCLUSIONS
The description of this experience, through the systemic vision of participants, provides a better understanding of the realities experienced by people with multimorbidity. Journal of Comorbidity 2014;4:11-21.
背景
多个国家的研究结果表明，多重疾病在初级医疗保健服务对象中非常普遍。从患者自身角度更深入地了解他们的经历，能够极大地丰富任何旨在帮助他们尽可能良好地应对多重疾病的干预措施。
目的
描述成年人应对多重疾病的基本经历结构。
设计
开展了一项现象学研究，以描述11位患有多重疾病的成年人的经历。这些成年人参与了两次半结构化访谈，并对访谈内容进行了严格分析。
结果
研究参与者多重疾病经历的核心是过早衰老的感觉、自我护理管理困难以及医疗保健系统获取问题，这些因素导致了问题的复杂性。尽管存在这些问题，但患有多重疾病的参与者报告称他们试图掌控自己的状况并适应日常生活。
结论
通过参与者的系统视角对这种经历的描述，能更好地理解患有多重疾病的人所面临的现实情况。《共病杂志》2014年；4：11 - 21。
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