Smith Kelsey, Reinman Laura, Schatz Jeffrey, Roberts Carla W
1 University of South Carolina, Barnwell College, Columbia, SC, USA.
2 University of South Carolina Medical School, Columbia, SC, USA.
J Pediatr Oncol Nurs. 2018 Jan/Feb;35(1):16-24. doi: 10.1177/1043454217735829. Epub 2017 Nov 2.
Pain episodes occur for many preschoolers with sickle cell disease (SCD), but little is known about parent perceptions of managing pain episodes in young children. We surveyed parents of young children with SCD who had managed pain episodes in the past year to assess their management and satisfaction with their strategies, challenges of pain management, and interest in additional education. Parents were recruited from health maintenance visits at a SCD specialty clinic. Forty-two of 51 parents (82%) of 2- to-6-year-olds reported managing pain over the past year. Parents who had managed pain primarily reported using medications. These parents reported at least moderate satisfaction with current management strategies and resources. At least one-third of parents found each facet of pain management queried as at least somewhat challenging. Identifying when their child was in pain, encouraging functional activities, and managing irritable behavior were reported as most challenging. Parents of young children with SCD reported interest in additional pain management education, which could promote better parent and child coping skills.
许多患有镰状细胞病（SCD）的学龄前儿童会出现疼痛发作，但对于家长如何看待幼儿疼痛发作的管理却知之甚少。我们对过去一年中曾处理过疼痛发作的患有SCD的幼儿家长进行了调查，以评估他们的管理方式、对策略的满意度、疼痛管理的挑战以及对额外教育的兴趣。家长们是从一家SCD专科诊所的健康维护就诊中招募的。在51名2至6岁儿童的家长中，有42名（82%）报告在过去一年中处理过疼痛。主要处理过疼痛的家长报告主要使用药物。这些家长对当前的管理策略和资源至少有中等程度的满意度。至少三分之一的家长认为所询问的疼痛管理的每个方面至少有些具有挑战性。报告称，确定孩子何时疼痛、鼓励进行功能性活动以及处理易怒行为是最具挑战性的。患有SCD的幼儿家长表示有兴趣接受额外的疼痛管理教育，这可以促进家长和孩子更好的应对技巧。
