Derlega Valerian J, Janda Louis H, Miranda Jeannie, Chen Ian A, Goodman B Mitchell, Smith Wally
Department of Psychology, Old Dominion University, Norfolk, Virginia, USA.
Pain Med. 2014 Sep;15(9):1496-507. doi: 10.1111/pme.12535. Epub 2014 Aug 26.
This cross-sectional study examines to whom and how fully sickle cell disease (SCD) patients talk to others about sickle cell pain, how helpful it is to talk with others about these pain episodes, and the association between talking to others about sickle cell pain episodes and patients' psychological adjustment and coping strategies in managing the disease.
A convenience sample of 73 African American patients with SCD (30 men and 43 women), were recruited from two SCD clinics at the time of routine medical visits. Most participants had been diagnosed with hemoglobin SS, and they reported an average number of 8.61 pain episodes in the previous 12 months. Participants were asked to whom, how fully, and how helpful it was to talk to significant others about SCD pain episodes experienced in the last 12 months. Patients also completed measures of their psychological adjustment as well as how they would manage a future sickle cell pain episode. Self-report ratings were made on Likert-type scales.
Based on paired samples t-tests, participants talked significantly more fully about their thoughts and feelings concerning pain episodes to God and to their primary medical providers than to either their parents, siblings, or an intimate partner/close friend. Bivariate correlations indicated that amount and helpfulness of talking about pain episodes to God and to parents were significantly associated with better psychological adjustment on selected measures. Also, bivariate correlations indicated that helpfulness in talking with siblings, intimate partner/close friend, and primary medical providers was positively related with willingness to go to a physician in the event of a future pain episode.
The results document to whom and how helpful it is to talk with others about SCD pain episodes and how SCD disclosure is related to strategies for managing this disease.
本横断面研究调查了镰状细胞病（SCD）患者会与谁谈论以及在多大程度上会与他人谈论镰状细胞疼痛，与他人谈论这些疼痛发作有多大帮助，以及与他人谈论镰状细胞疼痛发作与患者心理调适和应对疾病的策略之间的关联。
从两家SCD诊所招募了73名非裔美国SCD患者（30名男性和43名女性）作为便利样本，招募时间为常规就诊时。大多数参与者被诊断为血红蛋白SS型，他们报告在过去12个月中平均有8.61次疼痛发作。参与者被问及在过去12个月中经历的SCD疼痛发作，他们与重要他人谈论的对象、谈论的程度以及谈论的帮助程度。患者还完成了心理调适测量以及他们将如何应对未来镰状细胞疼痛发作的测量。自我报告评分采用李克特量表。
基于配对样本t检验，参与者向神和他们的初级医疗服务提供者谈论疼痛发作时的想法和感受，比向他们的父母、兄弟姐妹或亲密伴侣/密友谈论得更充分。双变量相关性表明，向神和父母谈论疼痛发作的程度和帮助程度与所选测量指标上更好的心理调适显著相关。此外，双变量相关性表明，与兄弟姐妹、亲密伴侣/密友和初级医疗服务提供者谈论的帮助程度与未来疼痛发作时去看医生的意愿呈正相关。
研究结果记录了与他人谈论SCD疼痛发作的对象、帮助程度以及SCD信息披露与管理该疾病策略之间的关系。
