Lindayani Linlin, Chen Yen-Chin, Wang Jung-Der, Ko Nai-Ying
J Assoc Nurses AIDS Care. 2018 Mar-Apr;29(2):300-309. doi: 10.1016/j.jana.2017.10.002. Epub 2017 Oct 10.
People living with HIV (PLWH) suffer from physical and psychological distress that palliative care could alleviate. Our cross-sectional study identified HIV-related problems and demands for palliative care at different disease stages, and their interactions with quality of life (QOL) in 215 PLWH from a referral hospital and an AIDS nongovernmental organization in Indonesia. A brief survey of demographic information, the Bahasa version of Problems and Needs of Palliative Care, and the World Health Organization Quality of Live in HIV-infected Persons instrument (WHOQOL-HIV BREF; Cronbach's alpha = .89) were used for data collection. Mean age was 33.5 years (SD = 4.7); 66% were male. Fatigue (67%) was the most prevalent symptom, and the symptom sleeping problems (54.9%) was the priority for palliative care. Higher spiritual and financial demands were found in PLWH with stage IV HIV. Multivariable analysis indicated negative associations between QOL and psychosocial problems, and demands for social and financial support. Interventions focused on psychosocial issues would improve the QOL for PLWH.
艾滋病毒感染者（PLWH）遭受着姑息治疗可以缓解的身心痛苦。我们的横断面研究在印度尼西亚一家转诊医院和一个艾滋病非政府组织的215名艾滋病毒感染者中，确定了不同疾病阶段与艾滋病毒相关的问题以及对姑息治疗的需求，及其与生活质量（QOL）的相互作用。通过一份简短的人口统计学信息调查问卷、巴哈萨语版的姑息治疗问题与需求问卷以及世界卫生组织艾滋病毒感染者生活质量量表（WHOQOL-HIV BREF；克朗巴赫α系数=0.89）来收集数据。平均年龄为33.5岁（标准差=4.7）；66%为男性。疲劳（67%）是最普遍的症状，睡眠问题（54.9%）这一症状是姑息治疗的首要关注点。在艾滋病毒IV期感染者中发现了更高的精神和经济需求。多变量分析表明生活质量与心理社会问题以及社会和经济支持需求之间存在负相关。针对心理社会问题的干预措施将改善艾滋病毒感染者的生活质量。
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