Nobre Nuno, Pereira Marco, Roine Risto P, Sutinen Jussi, Sintonen Harri
J Assoc Nurses AIDS Care. 2018 Mar-Apr;29(2):254-265. doi: 10.1016/j.jana.2017.08.006. Epub 2017 Sep 1.
We examined how HIV-related self-stigma was associated with different domains of quality of life (QoL), as measured by the World Health Organization Quality of Life in HIV-infected persons instrument (WHOQOL-HIV-Bref), and health-related quality of life (HRQoL) as measured by the generic 15D (15-dimensional measure of HRQoL), to identify the factors associated with self-stigma of people living with HIV (PLWH). The study sample included 440 patients living with HIV followed at the Infectious Disease Clinic of Helsinki University Hospital. Participants with more severe self-stigma reported significantly lower QoL and HRQoL. Male gender, cohabiting with a partner, and disclosure of HIV status were associated with less self-stigma; high education level and financial difficulties were associated with greater self-stigma. Having lived longer with HIV, being unemployed, and living alone were also predictors of self-stigma via financial difficulties. The findings suggest that self-stigma is a complex and multidimensional phenomenon that impacts the HRQoL of PLWH. Psychosocial interventions to enhance the well-being of PLWH are increasingly needed.
我们通过世界卫生组织艾滋病毒感染者生活质量量表(WHOQOL-HIV-Bref)所衡量的生活质量(QoL)的不同领域,以及通过通用的15D(健康相关生活质量的15维度测量)所衡量的健康相关生活质量(HRQoL),研究了与艾滋病毒相关的自我污名如何关联,以确定与艾滋病毒感染者(PLWH)自我污名相关的因素。研究样本包括在赫尔辛基大学医院传染病诊所随访的440名艾滋病毒感染者。自我污名更严重的参与者报告的生活质量和健康相关生活质量显著更低。男性、与伴侣同居以及披露艾滋病毒感染状况与较少的自我污名相关;高教育水平和经济困难与更大的自我污名相关。感染艾滋病毒时间更长、失业和独居也是通过经济困难导致自我污名的预测因素。研究结果表明,自我污名是一种复杂的多维度现象,会影响艾滋病毒感染者的健康相关生活质量。越来越需要采取心理社会干预措施来提高艾滋病毒感染者的幸福感。