Department of Psychology, University of Portsmouth, UK.
School of Health Sciences & Social Work, University of Portsmouth, UK.
Dementia (London). 2019 May;18(4):1237-1272. doi: 10.1177/1471301217692130. Epub 2017 Feb 17.
The domestic home is the preferred site for care provision for people with dementia and their families, therefore creating a dementia and caring friendly home environment is crucial. This systematic review synthesised qualitative studies to explore the role of the home environment and identify potential barriers and facilitators in home dementia care and support to inform future practice and research.
A systematic search in 12 databases identified international qualitative literature on perceptions and experiences of community-dwelling people with dementia, family and formal carers regarding the role of the home environment and ways to tackle daily challenges.
Forty qualitative studies were included and analysed using thematic synthesis. The main three themes were: 'home as a paradox', 'there is no magic formula' and 'adapting the physical space, objects and behaviour'. Findings indicate that home is an important setting and is likely to change significantly responding to the changing nature of dementia. Themes were later validated by family carers of people with dementia.
The home environment is an important setting for care and needs to remain flexible to accommodate changes and challenges. Family carers and people with dementia implement and often improvise, various environmental strategies. Continuous and tailor-made support at home is required.
国内家庭是痴呆症患者及其家属提供护理的首选场所,因此,营造一个适合痴呆症患者和照顾者的友好家庭环境至关重要。本系统评价综合了定性研究,旨在探讨家庭环境的作用,并确定家庭痴呆症护理和支持方面的潜在障碍和促进因素,为未来的实践和研究提供信息。
在 12 个数据库中进行系统检索,以确定关于社区居住的痴呆症患者、家庭和正式照顾者对家庭环境的作用以及应对日常挑战的方式的国际定性文献。
共纳入 40 项定性研究,并使用主题综合分析法进行分析。主要有三个主题:“家是一个矛盾体”、“没有万能的方法”和“调整物理空间、物品和行为”。研究结果表明,家庭是一个重要的环境,并且可能会根据痴呆症性质的变化而发生重大变化。这些主题后来得到了痴呆症患者家庭照顾者的验证。
家庭环境是护理的重要场所,需要保持灵活性,以适应变化和挑战。家庭照顾者和痴呆症患者实施并经常即兴发挥各种环境策略。需要提供持续的、量身定制的家庭支持。