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YouTube作为溃疡性结肠炎患者考虑手术时的信息来源。

YouTube as a source of information for patients considering surgery for ulcerative colitis.

作者信息

Baker Daniel Mark, Marshall Jack H, Lee Matthew J, Jones Georgina L, Brown Steven R, Lobo Alan J

机构信息

The University of Sheffield Medical School, Sheffield, UK; Department of General Surgery, Sheffield Teaching Hospitals, Sheffield, UK.

The University of Sheffield Medical School, Sheffield, UK; Department of General Surgery, Sheffield Teaching Hospitals, Sheffield, UK.

出版信息

J Surg Res. 2017 Dec;220:133-138. doi: 10.1016/j.jss.2017.06.094. Epub 2017 Jul 26.

DOI:10.1016/j.jss.2017.06.094
PMID:29180175
Abstract

BACKGROUND

With the range of health information online, assessing the resources that patients access may improve the content of preoperative information. Our aim was to assess the content of the most viewed videos on YouTube related to surgery for ulcerative colitis (UC).

METHODS

YouTube was searched for videos containing information on surgery for UC. The 50 most viewed videos were identified and user interaction analyzed. Upload source was classified as patient, individual health care professional (HCP), or hospital/professional association. Video content was categorized using an inductive thematic analysis on a purposive sample list of videos. The overarching theme of each video was classified once data saturation was achieved.

RESULTS

Thirty videos were uploaded by patients, 15 by hospitals and 5 by HCPs. Seventeen videos (34%) discussed life after surgery. Sixteen of these were uploaded by patients who had previously undergone surgery for UC. No videos of this theme were uploaded by HCPs. Ten videos (20%) described a number of different operations. Other themes identified were alternative health therapies (12%), colonoscopy (12%), life with UC (8%), miscellaneous (8%), and education for HCPs (6%). Patient uploaded videos had significantly more comments (P = 0.0079), with 28% of comments on patient videos being users requesting further information.

CONCLUSIONS

Understanding the sequelae of surgery is most important to preoperative patients. There are a lack of professional videos addressing this topic on YouTube. HCPs must participate in the production of videos and adapt preoperative consultations to address common preoperative concerns.

摘要

背景

鉴于在线健康信息的范围广泛,评估患者获取的资源可能会改善术前信息的内容。我们的目的是评估YouTube上观看次数最多的与溃疡性结肠炎(UC)手术相关视频的内容。

方法

在YouTube上搜索包含UC手术信息的视频。确定观看次数最多的50个视频并分析用户互动情况。上传来源分为患者、个体医疗保健专业人员(HCP)或医院/专业协会。视频内容使用归纳主题分析法对有目的的视频样本列表进行分类。一旦达到数据饱和,就对每个视频的总体主题进行分类。

结果

30个视频由患者上传,15个由医院上传,5个由HCP上传。17个视频(34%)讨论了手术后的生活。其中16个是由之前接受过UC手术的患者上传的。HCP没有上传这个主题的视频。10个视频(20%)描述了一些不同的手术。确定的其他主题包括替代健康疗法(12%)、结肠镜检查(12%)、UC患者的生活(8%)、其他(8%)以及针对HCP的教育(6%)。患者上传的视频评论明显更多(P = 0.0079),患者视频评论中有28%是用户请求进一步信息。

结论

对于术前患者来说,了解手术后遗症最为重要。YouTube上缺乏关于这个主题的专业视频。HCP必须参与视频制作,并调整术前咨询以解决常见的术前担忧。

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