1 Cornell Center for Research on End-of-Life Care , Weill Cornell Medicine, New York, New York.
2 Department of Medicine, Weill Cornell Medicine , New York, New York.
J Palliat Med. 2018 Apr;21(4):479-488. doi: 10.1089/jpm.2017.0386. Epub 2017 Nov 28.
The psychosocial challenges confronted by bereaved survivors may contribute to poor bereavement adjustment. Measures of the challenges of bereavement are limited. This study is a preliminary examination of the factor structure of a new measure of bereavement challenges and their relationships to quality of life and mental illness in bereaved cancer caregivers. This measure was designed to identify intervention targets to reduce the likelihood of prolonged grief.
Caregivers of advanced cancer patients were administered measures of bereavement challenges (Bereavement Challenges Scale, BCS), quality of life (Medical Outcomes Study Short Form-36), prolonged grief (PG-13), and mental disorders (Structured Clinical Interview for the DSM-IV). Principal component factor analyses identified the underlying factor structure of the BCS. We examined associations between the factors and caregiver quality of life, prolonged grief, and rates of mental disorders.
A factor analysis identified five factors: "Challenges with Connecting with Others," "Challenges with Change," "Challenges Imagining a Hopeful Future," "Challenges with Accepting the Loss," and "Challenges with Guilt." Greater endorsement of bereavement challenges was associated with worse quality of life, more severe symptoms of prolonged grief, and greater likelihood of meeting criteria for a mental disorder.
Assessing the challenges associated with bereavement is important to understanding barriers to bereaved individuals' adjustment. The five factors of the BCS point to potential targets for clinical intervention. Additional research on the BCS is needed, including validation in larger more diverse samples, and confirmation that reduction of these challenges is associated with less psychiatric morbidity and, specifically, symptoms of prolonged grief.
丧亲幸存者所面临的心理社会挑战可能导致丧亲适应不良。丧亲挑战的衡量标准有限。本研究初步探讨了一种新的丧亲挑战衡量标准的结构因素,以及它们与丧亲癌症照顾者的生活质量和精神疾病的关系。该衡量标准旨在确定干预目标,以降低长期悲伤的可能性。
对晚期癌症患者的照顾者进行丧亲挑战(丧亲挑战量表,BCS)、生活质量(医疗结果研究短表-36)、长期悲伤(PG-13)和精神障碍(DSM-IV 结构临床访谈)的评估。主成分因子分析确定了 BCS 的潜在结构因素。我们研究了这些因素与照顾者生活质量、长期悲伤和精神障碍发生率之间的关系。
因子分析确定了五个因素:“与他人联系的挑战”、“改变的挑战”、“想象美好未来的挑战”、“接受损失的挑战”和“内疚的挑战”。对丧亲挑战的认同程度越高,生活质量越差,长期悲伤的症状越严重,符合精神障碍标准的可能性越大。
评估与丧亲相关的挑战对于了解丧亲个体适应障碍的原因很重要。BCS 的五个因素指出了临床干预的潜在目标。需要对 BCS 进行更多的研究,包括在更大、更多样化的样本中进行验证,并确认这些挑战的减少与较少的精神疾病发病率有关,特别是与长期悲伤的症状有关。