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帕金森病患者参与集体治疗性歌唱的体验。

Experiences of Persons With Parkinson's Disease Engaged in Group Therapeutic Singing.

作者信息

Stegemöller Elizabeth L, Hurt Tera R, O'Connor Margaret C, Camp Randie D, Green Chrishelda W, Pattee Jenna C, Williams Ebony K

机构信息

Iowa State University.

出版信息

J Music Ther. 2018 Jan 13;54(4):405-431. doi: 10.1093/jmt/thx012.

Abstract

BACKGROUND

Parkinson's disease (PD) is a progressive neurodegenerative disorder that leads to altered neural control of movement, including the control of voice, respiration, and swallowing. There is a prevalent need to provide therapy for voice, respiration, and swallowing difficulties because current pharmacological and surgical treatments do not effectively treat these impairments. Previous research has demonstrated that singing may be a treatment option to target voice, respiratory, and swallowing impairments, as well as quality of life. However, participants' perspectives related to reasons for enrolling and engaging in programs as well as evaluation of singing programs have been neglected.

OBJECTIVE

The purpose of this descriptive study was thus to solicit participants' views of their involvement in a group singing intervention (GSI) led by credentialed music therapists.

METHODS

Twenty persons with PD were interviewed 4 to 6 months after completing the singing intervention. Participants were asked about 1) why they chose to participate, 2) what were the beneficial and non-beneficial aspects of participating, and 3) how to improve overall design and delivery of the GSI.

RESULTS

Using content analysis procedures, we learned that participants regarded their involvement in the study as mutually beneficial, fun, and engaging. Participants appreciated the fellowship with other persons with PD and offered minimal constructive criticism.

CONCLUSIONS

This study provided greater insight into how a therapeutic singing program may benefit participants and positively impact their lives.

摘要

背景

帕金森病(PD)是一种进行性神经退行性疾病,会导致对运动的神经控制发生改变,包括对声音、呼吸和吞咽的控制。由于目前的药物和手术治疗无法有效治疗这些损伤,因此普遍需要为声音、呼吸和吞咽困难提供治疗。先前的研究表明,唱歌可能是针对声音、呼吸和吞咽障碍以及生活质量的一种治疗选择。然而,参与者对报名参加和参与项目的原因以及对唱歌项目的评价的看法却被忽视了。

目的

因此,这项描述性研究的目的是征求参与者对他们参与由有资质的音乐治疗师主导的集体唱歌干预(GSI)的看法。

方法

20名帕金森病患者在完成唱歌干预4至6个月后接受了访谈。参与者被问及1)他们选择参与的原因,2)参与的有益和无益方面,以及3)如何改进GSI的整体设计和实施。

结果

通过内容分析程序,我们了解到参与者认为他们参与该研究是互利的、有趣的且引人入胜的。参与者珍视与其他帕金森病患者的情谊,并且提出的建设性批评很少。

结论

这项研究更深入地了解了治疗性唱歌项目如何使参与者受益并对他们的生活产生积极影响。

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