Patient, caregiver and physician perspectives on participating in a thoracic rapid tissue donation program.

OBJECTIVE

The collection of posthumous tissue from advanced stage lung cancer patients is beneficial to medical science. Recruiting living patients to a Rapid Tissue Donation Program (RTD) poses several psychosocial challenges and little is known about perceptions of joining this type of program. This study qualitatively examined perceptions of advanced stage lung cancer patients (n=14) participating in a lung cancer RTD program, their NoK (n=11), and physicians (n=6) at the Thoracic Oncology Clinic at H. Lee Moffitt Cancer Center & Research Institute, Tampa, Florida USA.

METHODS

Semi-structured interviews were conducted with participants and interview transcripts were analyzed using the constant comparison method.

RESULTS

Majority of patients joined to give back to research, discussed participation with family members, and desired for family to receive information about the use of the tissue after their death. All participating NoK were supportive of their family member's decision. Physicians described the program as running smoothly, but provided suggestions for process improvements.

CONCLUSION

Participants joined with intention to give back to research community and families were supportive of loved one's participation in RTD. Physicians agreed with overall process.

PRACTICE IMPLICATIONS

Key factors for a successful RTD program is tailoring to institutional and individual needs.