Medvedovska Nataliia V, Bukhanovska Tetiana M, Shevchyk Anatolii A
Shupyk National Medical Academy Of Postgraduate Education, Kyiv, Ukraine.
Wiad Lek. 2017;70(5):917-920.
The study of the composite qualities of life is an important component of the quality of provided medical aid. The way of our investigation that was chosen by us, the quality of life of the children of first years of life with the congenital pathology of vision arises the significant problem of assessment of its changes, because children of these ages can't take part in an interview and we adapted the standard questionnaire "Children Visual Function Questionnaire" (CVFQ) with its help the components of quality of the children of first years of life assess their parents.
Studying of life's quality changes among children of the first three year of life with visual analyzer's congenital pathology as instrument of their social adaptation's formation in the future became a research objective.
Out-patient and polyclinic units of Kyiv's healthcare institutions in which the medical care is provided to children of the first three years of life, particularly with congenital ophthalmic pathology (3 institutions) were scientific base of a research. We have been used the adapted version of the standardized questionnaire of Children's Visual Function Questionnaire (CVFQ) Felius et al were primary material. (2004) - 498 questionnaires, from them 398 of the main group and 100 of control. The purpose of a research required using the complex of research methods, a basis for which is a system approach, namely: medico-statistical and sociological (the respondents were informed about the purpose and research problems and timely gave the oral voluntary agreement in anonymous poll before the filling of questionnaires) methods.
The results of a research has established that parents of children from control group have estimated the general condition of children's vision totally in 89,75 ± 1,33 points vs 60,25 ± 1,96 points according to a total score of children's parents from the main group (the difference was 32,87%, at р<0,001). In general, the total number of points was 64,89 ± 1,01 vs 84,67 ± 0,92, with a difference in 23,4% (р<0,001) in the main group, according to life's quality total score of early years children's parents. Our research proves existence of children's life quality changes at the presence of visual violations among them that substantiates expediency of strengthening of early identification and treatment measures of visual function's violations at children, within the approved medico-technological documents.
Interaction in form of cooperation between the family doctor and children's ophthalmologist within the competences on maintaining children with visual analyzer's violation of functions from the first days of life, allows to perform effective long observation of a family, preventing development of medico-social disadaptation both the child, and a family in which it appeared. Research results of life's quality components changes are informative for a future social functioning of the child, his family, the parent's attitude to a child's disease and it's treatments, and performance of disease's treatment.
生活综合质量的研究是所提供医疗救助质量的重要组成部分。我们所选择的调查方式，即对患有先天性视力病变的一岁儿童的生活质量进行研究，引发了对其变化评估的重大问题，因为这些年龄段的儿童无法参与访谈，我们采用了标准问卷“儿童视觉功能问卷”（CVFQ），借助它，一岁儿童的生活质量组成部分由其父母进行评估。
研究一岁至三岁患有视觉分析器先天性病变的儿童的生活质量变化，以此作为他们未来社会适应形成的一种手段，这成为了一项研究目标。
基辅医疗机构的门诊和综合诊疗科室，这些科室为一岁至三岁的儿童，特别是患有先天性眼科病变的儿童提供医疗服务（3家机构），是该研究的科学基础。我们使用了儿童视觉功能问卷（CVFQ）标准化问卷的改编版，Felius等人（2004年）的问卷是主要材料。共498份问卷，其中398份属于主要组，100份属于对照组。该研究的目的要求使用综合研究方法，其基础是系统方法，即：医学统计学和社会学方法（在填写问卷前，向受访者告知研究目的和问题，并在匿名调查中及时获得他们的口头自愿同意）。
研究结果表明，对照组儿童的父母对儿童视力总体状况的评估总分为89.75±1.33分，而主要组儿童父母的总分为60.25±1.96分（差异为32.87%，p<0.001）。总体而言，根据一岁儿童父母的生活质量总分，主要组的总分是64.89±1.01分，对照组为84.67±0.92分，差异为23.4%（p<0.001）。我们的研究证明，儿童存在视力障碍时其生活质量会发生变化，这证实了在已批准的医学技术文件范围内，加强对儿童视力功能障碍的早期识别和治疗措施的必要性。
家庭医生和儿童眼科医生在从儿童生命最初几天起就对患有视觉分析器功能障碍的儿童进行护理的职责范围内，以合作形式进行互动，能够对家庭进行有效的长期观察，防止儿童及其出现问题的家庭发生医学社会适应不良。生活质量组成部分变化的研究结果对于儿童未来的社会功能、其家庭、父母对儿童疾病及其治疗的态度以及疾病治疗的实施都具有参考价值。
