Dengler Robert, Walawgo Thomas, Baumann Walter, Cassens Manfred
Hochschule für Oekonomie & Management (FOM), Institut für Gesundheit und Soziales (ifgs), München.
Wissenschafliches Institut der Niedergelassenen Hämatologen und Onkologen GmbH (WINHO), Köln.
Gesundheitswesen. 2019 Jun;81(6):478-485. doi: 10.1055/s-0043-121460. Epub 2017 Dec 6.
Outpatient specialized care (ASV) is intended to improve interdisciplinary, transsectoral care for patients with rare or complex diseases, especially cancer. Up to now, only very few such specialized care teams have been established. The aim of our study was to evaluate the current state of information and participation as well as reasons for the reluctance of office-based hematologists and oncologists.
We conducted a web-based survey amongst office-based hematologists and oncologists in Germany and received responses from 145 institutions comprising more then 350 doctors working there. The questions comprised 22 items concerning the state of information, implementation as well as obstacles to participation and evaluation of the ASV.
The majority of the interviewed doctors was well informed about ASV. Only a minority was in principle against this concept. 6% of them had already treated patients within ASV, 8% had completed the preparation, 16% were in the preparation process, 26% were indecisive and 45% had decided not to participate. The main reasons for non-participation or barriers were high expenditure and a lack of benefit for patients, strategic positioning as well as reimbursement.
Although implemented more than 5 years ago, ASV plays no relevant role in patient care. The reluctance seems not to be due to information deficits, but rather to obstacles in the participation procedure. Relevant advantages for patient care, interdisciplinary communication or reimbursement are not anticipated. As long as the current low acceptance to participate in ASV is not improved, it cannot unfold its potential.
门诊专科护理(ASV)旨在改善对罕见病或复杂疾病患者,尤其是癌症患者的跨学科、跨部门护理。到目前为止,仅建立了极少数这样的专科护理团队。我们研究的目的是评估信息和参与的现状,以及基层血液科医生和肿瘤科医生不愿参与的原因。
我们对德国的基层血液科医生和肿瘤科医生进行了一项基于网络的调查,收到了来自145个机构的回复,这些机构有350多名医生在那里工作。问题包括22项关于信息状态、实施情况以及参与和评估ASV的障碍。
大多数受访医生对ASV有充分了解。只有少数人原则上反对这一概念。其中6%的人已经在ASV中治疗过患者,8%的人已经完成准备工作,16%的人正在准备过程中,26%的人犹豫不决,45%的人决定不参与。不参与或存在障碍的主要原因是高成本、对患者缺乏益处、战略定位以及报销问题。
尽管ASV在5年多以前就已实施,但在患者护理中并未发挥相关作用。不愿参与似乎并非由于信息不足,而是参与过程中存在障碍。未预期到对患者护理、跨学科交流或报销有相关益处。只要目前对参与ASV的低接受度得不到改善,它就无法发挥其潜力。