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儿童对心脏起搏器的心理社会反应。

Psychosocial responses of children to cardiac pacemakers.

作者信息

Alpern D, Uzark K, Dick M

机构信息

Division of Pediatric Cardiology, C. S. Mott Children's Hospital, Ann Arbor, MI 48109-0204.

出版信息

J Pediatr. 1989 Mar;114(3):494-501. doi: 10.1016/s0022-3476(89)80582-7.

Abstract

To examine the psychosocial responses of children and adolescents with a cardiac pacemaker and compare their responses to those of their peers, we evaluated 30 pediatric pacemaker patients, aged 7 to 19 years, and two age- and sex-matched comparison groups, including 30 patients with similar heart disease but without pacemakers and 30 physically healthy children, using standardized psychometric tests and a specific interview format. We postulated that children with pacemakers would experience greater stress in psychosocial adaptation. No significant differences on standardized measures of trait anxiety, self-competence, or self-esteem were found between the pacemaker group and the comparison groups. In contrast, pacemaker subjects were significantly (p less than 0.05) more external in their locus-of-control orientation than were healthy subjects, suggesting a diminished sense of personal control and less autonomy. Pacemaker subjects, particularly the older ones, had significantly (p less than 0.05) greater knowledge of pacemaker systems than did subjects in the other two groups, facilitating the use of intellectualization as a coping mechanism. The pacemaker patients were likely to be as fearful of social rejection as of potential pacemaker failure. All three groups identified potential negative peer reactions toward an individual with a pacemaker. The patients with cardiac disease but without pacemakers and the healthy subjects perceived significant (p less than 0.05) social and emotional differences between patients with pacemakers and their peers, but the pacemaker patients did not view themselves as different from their peers. This study demonstrates healthy psychosocial adaptation of children with cardiac pacemakers. Although these children appear to cope effectively with the stress of their life situation through the use of denial and intellectualization, they may experience problems both in the development of autonomy and in social isolation and rejection.

摘要

为了研究植入心脏起搏器的儿童和青少年的心理社会反应,并将他们的反应与同龄人进行比较,我们使用标准化心理测量测试和特定的访谈形式,对30名年龄在7至19岁的儿科起搏器患者以及两个年龄和性别匹配的对照组进行了评估,其中一个对照组包括30名患有类似心脏病但未植入起搏器的患者,另一个对照组包括30名身体健康的儿童。我们推测植入起搏器的儿童在心理社会适应方面会经历更大的压力。在特质焦虑、自我能力或自尊的标准化测量方面,起搏器组与对照组之间未发现显著差异。相比之下,起搏器受试者在控制点取向方面比健康受试者更明显地表现为外部取向(p小于0.05),这表明个人控制感降低且自主性减弱。起搏器受试者,尤其是年龄较大的受试者,对起搏器系统的了解明显(p小于0.05)多于其他两组的受试者,这有助于他们将理智化作为一种应对机制。起搏器患者可能与担心起搏器潜在故障一样,害怕被社会排斥。所有三组都确定了同龄人对植入起搏器个体可能产生的负面反应。患有心脏病但未植入起搏器的患者和健康受试者认为起搏器患者与其同龄人之间存在显著的(p小于0.05)社会和情感差异,但起搏器患者并不认为自己与同龄人不同。这项研究表明植入心脏起搏器的儿童具有良好的心理社会适应能力。尽管这些儿童似乎通过否认和理智化有效地应对了生活状况带来的压力,但他们在自主性发展以及社会孤立和排斥方面可能会遇到问题。

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