Shackleford Jenna L, Minick Ptlene, Kelley Susan J
a Byrdine F. Lewis School of Nursing and Health Professions , Georgia State University , Atlanta , Georgia , USA.
Compr Child Adolesc Nurs. 2019 Jun;42(2):92-108. doi: 10.1080/24694193.2017.1397066. Epub 2017 Dec 13.
The purpose of this study was to understand nurses' perceptions and experiences regarding Quality of Life (QOL) of adolescents with complex congenital heart disease (CHD). Interpretive, hermeneutic, phenomenology was used to explore the perceptions and experiences of nurses who care for adolescents with complex CHD. The participants included 6 female registered nurses with experience taking care of adolescents with complex CHD. Data were collected using semi-structured interviews. Data analysis revealed 4 themes: QOL depends on how the psychological and social issues are interwoven with the physical; finding that balance between overprotection and too much freedom; setting goals to envision a future; and not being defined by a CHD. These results indicate that understanding nurses' perspectives and experiences may contribute to effective guidance for adolescents with complex CHD transitioning into adulthood.
本研究的目的是了解护士对患有复杂先天性心脏病（CHD）青少年的生活质量（QOL）的看法和经历。采用解释性、诠释学现象学方法来探究照顾患有复杂CHD青少年的护士的看法和经历。参与者包括6名有照顾患有复杂CHD青少年经验的女性注册护士。通过半结构化访谈收集数据。数据分析揭示了4个主题：生活质量取决于心理和社会问题与身体问题如何相互交织；在过度保护和过度自由之间找到平衡；设定目标以展望未来；以及不被先天性心脏病所定义。这些结果表明，了解护士的观点和经历可能有助于为患有复杂CHD的青少年顺利过渡到成年期提供有效的指导。
