Department of Nursing, Hsin Sheng Junior College of Medical Care and Management, Taoyuan, Taiwan.
Department of Pediatrics, Chang Gung Children's Hospital, Taoyuan, Taiwan.
J Pediatr Nurs. 2024 Jul-Aug;77:204-211. doi: 10.1016/j.pedn.2024.03.028. Epub 2024 Apr 8.
To explore the parent-child relationship through the subjective experience of adolescents with congenital heart disease (CHD).
A descriptive phenomenology approach was adopted. Twelve adolescents aged from 12 to 18 years with CHD were recruited from the pediatric cardiology clinics at two medical centers in Taiwan. Data were collected through in-depth interviews. Data were analyzed using Colaizzi's phenomenological analysis method, and results were reported in accordance with the Consolidated Criteria for Reporting Qualitative Research guidelines.
The experiences of the adolescents with CHD revealed five themes: 1. the enhancement of self-worth through parents' love; 2. the importance of parental support in desperate situations; 3. the development of a sense of security through mutual understanding; 4. growth under parental expectations; and 5. parental overcontrol disguised as love.
The parent-child relationship encompasses both positive and negative experiences. Adolescents prioritize their relationship with parents over that with peers.
Nurses caring for adolescents with CHD can improve care by recognizing the influence of parental love, support in challenges, mutual understanding, parental expectations, and potential negative consequences of overcontrol. This insight guides effective guidance for adolescents, enhancing parent-child interactions and overall well-being.
通过先天性心脏病（CHD）青少年的主观体验来探讨亲子关系。
采用描述性现象学方法。从台湾两家医疗中心的儿科心脏病诊所招募了 12 名年龄在 12 至 18 岁之间的 CHD 青少年。通过深入访谈收集数据。使用科莱齐的现象学分析方法对数据进行分析，并按照定性研究报告的统一标准报告结果。
CHD 青少年的经历揭示了五个主题：1. 父母的爱增强了自我价值感；2. 在绝境中父母支持的重要性；3. 通过相互理解发展安全感；4. 在父母期望下成长；5. 父母以爱为名的过度控制。
亲子关系既有积极的体验，也有消极的体验。青少年优先考虑与父母的关系而不是与同伴的关系。
照顾 CHD 青少年的护士可以通过认识到父母之爱、挑战中的支持、相互理解、父母期望以及过度控制的潜在负面影响来改善护理。这种洞察力指导对青少年进行有效的指导，增强了亲子互动和整体幸福感。
