Bunketorp-Käll Lina, Lundgren-Nilsson Åsa, Nilsson Michael, Blomstrand Christian
a Center for Brain Repair and Rehabilitation, Department of Clinical Neuroscience , Institute of Neuroscience and Physiology, The Sahlgrenska Academy at the University of Gothenburg , Gothenburg , Sweden.
b Stroke Center West, Department of Clinical Neuroscience , Institute of Neuroscience and Physiology, The Sahlgrenska Academy at the University of Gothenburg , Gothenburg , Sweden.
Top Stroke Rehabil. 2018 Apr;25(3):161-167. doi: 10.1080/10749357.2017.1413761. Epub 2017 Dec 13.
Purpose The burden of caregiving for stroke survivors is well known, but the effect of late stroke rehabilitation on the life situation of informal caregivers is unknown. Here, we assessed changes in the life situation of informal caregivers of stroke survivors enrolled in a multimodal intervention trial. Methods This controlled study was a questionnaire-based survey accompanying a three-armed randomized controlled trial of 123 stroke survivors. The care recipients of 106 caregivers who chose to participate were assigned to rhythm-and-music-based therapy (R-MT; n = 37), horse-riding therapy (H-RT; n = 37), or delayed intervention (control group, n = 32). Perceived changes in the life situation of the caregivers were evaluated with the Life Situation among Spouses after the Stroke Event (LISS) questionnaire before randomization, after the 12-week intervention, and 3 and 6 months later. Results After the intervention, the change in the median LISS score was significantly higher among intervention caregivers (1.5 [interquartile range (IQR) 8.8]) than controls (1.5 [IQR 8.8] vs. 0.0 [IQR 12.0], p = 0.036). The improvement was maintained at 3 months (1.5 [IQR 9.0] vs. 0.0 [IQR 10.5], p = 0.039) but not at 6 months (p = 0.284). Conclusion Engaging stroke survivors in multimodal interventions late after stroke appears to have potential to produce gains also in the general life situation of informal caregivers.
目的 中风幸存者的照护负担众所周知，但晚期中风康复对非正式照护者生活状况的影响尚不清楚。在此，我们评估了参加多模式干预试验的中风幸存者非正式照护者生活状况的变化。方法 这项对照研究是一项基于问卷的调查，伴随一项针对123名中风幸存者的三臂随机对照试验。选择参与的106名照护者的受照护对象被分配到基于节奏和音乐的治疗组（R-MT；n = 37）、骑马治疗组（H-RT；n = 37）或延迟干预组（对照组，n = 32）。在随机分组前、12周干预后以及3个月和6个月后，使用中风事件后配偶生活状况（LISS）问卷评估照护者生活状况的感知变化。结果 干预后，干预组照护者的LISS中位数得分变化（1.5[四分位间距（IQR）8.8]）显著高于对照组（1.5[IQR 8.8]对0.0[IQR 12.0]，p = 0.036）。这种改善在3个月时得以维持（1.5[IQR 9.0]对0.0[IQR 10.5]，p = 0.039），但在6个月时未维持（p = 0.284）。结论 使中风幸存者在中风晚期参与多模式干预似乎也有可能改善非正式照护者的总体生活状况。
