School of Occupational Therapy, Dalhousie University, Halifax, Canada; Radboud University Radboud university medical center, Radboud Institute for Health Sciences, IQ healthcare, Nijmegen, The Netherlands; Faculty of Health and Social Studies, Han University of Applied Sciences, Nijmegen, The Netherlands.
School of Occupational Therapy, Dalhousie University, Halifax, Canada.
Patient Educ Couns. 2018 Apr;101(4):579-595. doi: 10.1016/j.pec.2017.10.014. Epub 2017 Oct 25.
To identify self-report, self-management measures for adults with chronic conditions, and describe their purpose, theoretical foundation, dimensionality (multi versus uni), and scope (generic versus condition specific).
A search of four databases (8479 articles) resulted in a scoping review of 28 self-management measures.
Although authors identified tools as measures of self-management, wide variation in constructs measured, purpose, and theoretical foundations existed. Subscales on 13 multidimensional tools collectively measure domains of self-management relevant to clients, however no one tool's subscales cover all domains.
Viewing self-management as a complex, multidimensional whole, demonstrated that existing measures assess different, related aspects of self-management. Activities and social roles, though important to patients, are rarely measured. Measures with capacity to quantify and distinguish aspects of self-management may promote tailored patient care.
In selecting tools for research or assessment, the reason for development, definitions, and theories underpinning the measure should be scrutinized. Our ability to measure self-management must be rigorously mapped to provide comprehensive and system-wide care for clients with chronic conditions. Viewing self-management as a complex whole will help practitioners to understand the patient perspective and their contribution in supporting each individual patient.
确定针对慢性病成人的自我报告和自我管理措施，并描述其目的、理论基础、维度（多维度与单维度）和范围（通用与特定疾病）。
对四个数据库（8479 篇文章）进行搜索，对 28 种自我管理措施进行了范围综述。
尽管作者将工具确定为自我管理的衡量标准，但所测量的结构、目的和理论基础存在广泛差异。13 种多维工具的子量表共同测量与患者相关的自我管理领域，但没有一种工具的子量表涵盖所有领域。
将自我管理视为一个复杂的多维整体，表明现有的衡量标准评估了自我管理的不同相关方面。活动和社会角色虽然对患者很重要，但很少被测量。能够量化和区分自我管理方面的衡量标准的工具可能会促进针对患者的个性化护理。
在选择用于研究或评估的工具时，应仔细审查工具开发的原因、定义和支撑其的理论。我们衡量自我管理的能力必须经过严格的映射，以提供全面和系统的慢性病患者护理。将自我管理视为一个复杂的整体将帮助从业者从患者角度理解他们在支持每个个体患者方面的贡献。
