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选择悖论与自主性幻觉:安乐死运动中伦理主体的构建。

Paradox of choice and the illusion of autonomy: The construction of ethical subjects in right-to-die activism.

机构信息

a School of Sociological and Anthropological Studies , University of Ottawa , Ottawa , Ontario , Canada.

出版信息

Death Stud. 2018 May-Jun;42(5):329-335. doi: 10.1080/07481187.2017.1396646. Epub 2018 Feb 20.

DOI:10.1080/07481187.2017.1396646
PMID:29279002
Abstract

The right to die is an issue is predicated on larger cultural understandings of autonomy. Autonomy, in turn, is centered around assumptions of choice, that individuals are able to make health-related decisions based on a rational calculation. In such a way, a medically assisted death is differentiated from suicide. Through an ethnographic study of right-to-die activists in North America and Australia and how they understand ideals of "good deaths," this article will complicate this view by examining the ethical subject constructed by such activism that reveals autonomy to be a useful guiding fiction that mask larger ethical relationships.

摘要

死亡权利是一个基于对自主性的更大文化理解的问题。自主性反过来又以选择的假设为中心,即个人能够基于理性计算做出与健康相关的决策。通过这种方式,医疗协助死亡与自杀有所区别。本文通过对北美和澳大利亚的死亡权利活动家的民族志研究,以及他们如何理解“美好死亡”的理想,通过考察这种激进主义所构建的伦理主体,揭示自主性是一个有用的指导虚构,掩盖了更大的伦理关系,从而使这种观点变得复杂。

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Paradox of choice and the illusion of autonomy: The construction of ethical subjects in right-to-die activism.选择悖论与自主性幻觉:安乐死运动中伦理主体的构建。
Death Stud. 2018 May-Jun;42(5):329-335. doi: 10.1080/07481187.2017.1396646. Epub 2018 Feb 20.
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Medical assistance in dying and the meaning of care: Perspectives of nurses, pharmacists, and social workers.《安乐死医疗援助和关怀的意义:护士、药剂师和社会工作者的观点》。
Health (London). 2023 Jan;27(1):60-77. doi: 10.1177/1363459321996774. Epub 2021 Mar 8.
2
Barriers in implementing the dying patient law: the Israeli experience - a qualitative study.实施临终患者法律的障碍:以色列的经验——一项定性研究
BMC Med Ethics. 2020 Dec 11;21(1):126. doi: 10.1186/s12910-020-00564-5.