University of Oslo, Norway; Vestre Viken Hospital Trust, Norway.
Akershus University Hospital, Norway.
Nurs Ethics. 2019 Feb;26(1):212-223. doi: 10.1177/0969733017694498. Epub 2017 Feb 27.
: Young next of kin to patients with mental health problems are faced with many challenges. It is important to focus on the special needs of children and adolescents as next of kin to ensure their welfare and prevent harm.
: We aimed to investigate young next of kin's need for information and involvement, to examine the ways they cope with situations involving coercion related to the treatment of their relative, and to identify ethical challenges.
: We conducted a qualitative study based on semi-structured, individual interviews.
: Seven young next of kin aged 14-22 years participated in the study. The informants were recruited from a regional hospital trust in Norway.
: The study was approved by the National Data Protection Official for Research and based upon informed consent and confidentiality.
: The adolescents wanted more information and described a need for increased interaction with their sick relative at the hospital. They struggled to keep their relationship with their relative intact, and they described communication problems in the family. Coercive treatment was perceived in a negative way.
: The study finds that there are ethical challenges at stake for young next of kin and their families other than those that are often emphasized by traditional healthcare, which often focuses on the individual patient's rights. These challenges are related to the young next of kin's needs for interconnectedness and for the preservation of relationships as well as challenges related to family communication and the need for information.
: The study finds a need for more family-oriented perspectives in both mental healthcare practices and healthcare ethics.
患有精神健康问题的患者的年轻近亲面临着许多挑战。关注儿童和青少年近亲的特殊需求非常重要，以确保他们的福利并防止伤害。
我们旨在调查年轻近亲对信息和参与的需求，研究他们应对涉及亲属治疗的强制情况的方式，并确定伦理挑战。
我们进行了一项基于半结构化个体访谈的定性研究。
7 名年龄在 14-22 岁的年轻近亲参加了这项研究。这些知情人是从挪威一家地区医院信托基金招募的。
该研究获得了国家数据保护官员的批准，基于知情同意和保密。
青少年希望获得更多信息，并表示希望在医院与患病亲属增加互动。他们努力保持与亲属的关系完整，并描述了家庭中的沟通问题。他们认为强制治疗是负面的。
该研究发现，对于年轻近亲及其家人来说，存在着除了传统医疗保健经常强调的那些之外的伦理挑战，传统医疗保健通常侧重于个体患者的权利。这些挑战与年轻近亲的相互联系和关系维护需求有关，以及与家庭沟通和信息需求有关的挑战。
该研究发现，在精神保健实践和医疗保健伦理中，需要更多以家庭为导向的观点。
