Clinic for Internal Medicine and Acute, Department of Nephrology, Aalborg University Hospital, Aalborg, Denmark.
Clinical Nursing Research Unit, Aalborg University Hospital, Aalborg, Denmark.
J Ren Care. 2021 Jun;47(2):87-95. doi: 10.1111/jorc.12352. Epub 2020 Oct 8.
Chronic kidney disease (CKD) has been associated with a progressive decline in cognitive functions. This may lead to significant consequences for the person with CKD physically, psychologically and socially and may affect the everyday lives of the family.
To explore the everyday life experiences of next of kin of persons with CKD and cognitive impairment (CI).
A qualitative design with semi-structured individual interviews with next of kin of persons with CKD and CI to gather in-depth information about the everyday life experiences of the next of kin. Interviews were recorded, transcribed verbatim and analysed inductively based on qualitative thematic analysis.
Based on the analysis, four themes were constructed: CI evolves gradually and is multifaceted; balancing everyday life challenges; finding ways to deal with their situation and knowledge enables understanding.
Next of kin took responsibility and developed strategies for making everyday life function for the person with CKD and CI, which required considerable structure and a number of actions. They needed information about the CI and developed strategies for how to protect the person with CKD from being exposed. To provide themselves a personal space, next of kin turned to family, friends and people in comparable situations. To identify and address unmet care needs, healthcare professionals must proactively demonstrate an increased focus on CI and focus on the potential care needs of the person with CKD and their next of kin.
慢性肾脏病（CKD）与认知功能的逐渐下降有关。这可能会对 CKD 患者的身体、心理和社会产生重大影响，并可能影响到他们家庭的日常生活。
探索 CKD 和认知障碍（CI）患者亲属的日常生活体验。
采用半结构式个体访谈的定性设计，对 CKD 和 CI 患者的亲属进行访谈，以深入了解亲属的日常生活体验。访谈进行了录音、逐字转录，并根据定性主题分析进行了归纳分析。
基于分析，构建了四个主题：CI 逐渐演变且多方面；平衡日常生活挑战；寻找应对自身处境的方法；知识促进理解。
亲属为 CKD 和 CI 患者承担责任并制定了日常生活策略，这需要相当的结构和许多行动。他们需要有关 CI 的信息，并制定策略以防止 CKD 患者受到暴露。为了给自己一个个人空间，亲属求助于家人、朋友和处于类似情况的人。为了确定和满足未满足的护理需求，医疗保健专业人员必须主动关注 CI，并关注 CKD 患者及其亲属的潜在护理需求。
