1 University of Leeds, Leeds, UK.
2 Independent Researcher, Edinburgh, Scotland.
Qual Health Res. 2018 Mar;28(4):572-586. doi: 10.1177/1049732317746378. Epub 2017 Dec 27.
Length and complexity of illness and treatment in early breast cancer mean that the acute phase may extend over months. Employing concepts of "trajectory" and "work" from chronic illness, we explored the temporality of the illness experience for women as it unfolded from diagnosis through acute treatment. We performed multiple, qualitative interviews with 14 women at critical points in their first year postdiagnosis. We differentiated between subphases of the acute breast cancer trajectory: becoming a person with breast cancer: a turning point; first steps in treatment: struggling to protect self-concept; being and feeling ill: "cure" as suffering; and conditional "recovering": an uncertain future. Each subphase represented the distinctive context in which illness management took place with consequences for the work women and those close to them engaged in, to manage the practical, emotional, relational, and existential demands of an illness that intruded every aspect of their lives.
早期乳腺癌的病程和治疗的复杂性意味着急性期可能会持续数月。我们借鉴慢性病中的“轨迹”和“工作”概念,探讨了女性从诊断到急性治疗期间疾病经历的时间性。我们在诊断后第一年的关键时间点对 14 名女性进行了多次定性访谈。我们将急性乳腺癌轨迹的亚阶段区分开来:成为乳腺癌患者:一个转折点;治疗的第一步:努力保护自我概念;患病和感觉不适:“治愈”即痛苦;以及有条件的“恢复”:不确定的未来。每个亚阶段都代表了疾病管理发生的独特背景,对女性及其亲近的人所从事的工作产生影响,以应对侵入她们生活方方面面的疾病的实际、情感、关系和存在需求。