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嗓音障碍儿童的健康相关生活质量及法国儿童嗓音障碍指数的验证

Health-related quality of life in children with dysphonia and validation of the French Pediatric Voice Handicap Index.

作者信息

Oddon P A, Boucekine M, Boyer L, Triglia J M, Nicollas R

机构信息

APHM, Department of Pediatric Otorhinolaryngology Head and Neck Surgery, La Timone Children's Hospital, 13385, Marseille, France.

Aix-Marseille University, EA 3279 - Public Health, Chronic Diseases and Quality of Life - Research Unit, Marseille, France.

出版信息

Int J Pediatr Otorhinolaryngol. 2018 Jan;104:205-209. doi: 10.1016/j.ijporl.2017.09.026. Epub 2017 Sep 28.

DOI:10.1016/j.ijporl.2017.09.026
PMID:29287869
Abstract

OBJECTIVE

voice disorders are common in the pediatric population and can negatively affect children's quality of life. The pediatric voice handicap Index (pVHI) is a valid instrument to assess parental perception of their children voice but it is not translated into French language. The aim of the present study was to adapt a French version of the pVHI and to evaluate its psychometric properties including construct validity, reliability, and some aspects of external validity.

PATIENTS AND METHOD

we performed a cross sectional study including 32 dysphonic children and 60 children with no history of voice problems between 3 and 12 years of age. The original pVHI was translated into French language according to forward-backward rules and then administered to parents or caregivers. Construct validity and internal consistency were explored using confirmatory factor analysis and Cronbach's alpha. The questionnaire was filled twice to assess test-retest reliability using the intra-class correlation coefficient. The external validity was explored by comparing the French pVHI total and subscales scores between dysphonic and asymptomatic children. Correlations between the French pVHI and both the perceptual GRBAS scale and the health-related quality of life (HRQOL) survey "Vécu et Santé Perçu de l'Adolescent et de l'Enfant" (VSP-Ap) were also performed.

RESULTS

the structure of the French pVHI showed a good fit with excellent reliability (α = 0.929) and high test-retest reliability. Significant differences were found between the group of dysphonic children and the control group (p < 0.001). The French pVHI scores were positively correlated to all parameters of the GRBAS scale (p < 0.05). Significant negative correlations were found between the Functional domain of the pVHI and various domains of the VSP-Ap as Leisure Activities, Schooling and Sentimental Relationship (p < 0.05).

CONCLUSION

the French pVHI is considered to be a valid and reliable instrument to assess voice-related quality of life in children with voice disorder. We recommend its use in the multidimensional protocols for assessing voice disorder in the pediatric population.

摘要

目的

嗓音障碍在儿童群体中很常见,会对儿童的生活质量产生负面影响。儿童嗓音障碍指数(pVHI)是评估家长对其孩子嗓音感知的有效工具,但尚未翻译成法语。本研究的目的是改编pVHI的法语版本,并评估其心理测量特性,包括结构效度、信度和外部效度的一些方面。

患者与方法

我们进行了一项横断面研究,纳入了32名嗓音障碍儿童和60名3至12岁无嗓音问题病史的儿童。根据前后翻译规则将原始的pVHI翻译成法语,然后施用于家长或照料者。使用验证性因子分析和克朗巴哈系数探索结构效度和内部一致性。问卷填写两次,使用组内相关系数评估重测信度。通过比较嗓音障碍儿童和无症状儿童的法语pVHI总分及分量表得分来探索外部效度。还进行了法语pVHI与感知GRBAS量表以及健康相关生活质量(HRQOL)调查“青少年及儿童的生活与健康感知”(VSP-Ap)之间的相关性分析。

结果

法语pVHI的结构显示出良好的拟合度,具有出色的信度(α = 0.929)和较高的重测信度。嗓音障碍儿童组与对照组之间存在显著差异(p < 0.001)。法语pVHI得分与GRBAS量表的所有参数呈正相关(p < 0.05)。在pVHI的功能领域与VSP-Ap的各个领域(如休闲活动、学业和情感关系)之间发现了显著的负相关(p < 0.05)。

结论

法语pVHI被认为是评估嗓音障碍儿童嗓音相关生活质量的有效且可靠的工具。我们建议在评估儿童群体嗓音障碍的多维度方案中使用它。

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