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在一个小规模社会中,孩童时期与患有精神疾病的父母生活在一起的成年人的经历:一项定性研究。

Experiences of adults who as children lived with a parent experiencing mental illness in a small-scale society : A Qualitative study.

作者信息

Dam K, Joensen D G, Hall E O C

机构信息

Department of Nursing, Faculty of Natural and Health Sciences, University of the Faroe Islands, Torshavn, The Faroe Islands.

Section of Nursing, Department of Public Health, Health, Aarhus University, Aarhus, Denmark.

出版信息

J Psychiatr Ment Health Nurs. 2018 Mar;25(2):78-87. doi: 10.1111/jpm.12446. Epub 2018 Jan 30.

DOI:10.1111/jpm.12446
PMID:29288538
Abstract

UNLABELLED

WHAT IS KNOWN ON THE SUBJECT?: Children of parent with severe mental illness are often carrying a caring burden; they keep the illness in the family, are documented to be stigmatized, bullied and to take special attention to their mentally ill parent's health and well-being. Little is however known about these children's experiences when growing up in a small-scale society. WHAT THIS STUDY ADDS TO EXISTING KNOWLEDGE?: Children's experiences of living with a parent with severe mental illness in the small-scale society (Faroe Islands) are paradoxical, life is often unreasonable and evidently contradictory but anyway connected. The results show that "everybody knows everybody" which refers to that, in the small-scale society, it is difficult to be anonymous. The children were familiar with that people talked and had a prejudiced attitude; this resulted that the participants were constantly reminded of their mental ill parent's difference, and they were feeling less worthy than their pals. Children of parents with severe mental illness in a small-scale society need to support from the close family as well as mental healthcare professionals. WHAT ARE THE IMPLICATIONS FOR PRACTICE?: The study adds knowledge about the challenges that children of mental ill parents have to go through. Dialogue among mental healthcare colleagues not only about caring for the sick parent but also about modes of caring for the children and the family at large would deepen the staff's knowing of the need for family-centred care within mental health care.

ABSTRACT

Introduction An estimated 23% of children worldwide live with a parent experiencing mental illness. These children are exposed to emotional and psychosocial challenges. Little is known about these children when living in small-scale societies. Aim To explore how adults, who as children lived with parents experiencing mental illness in a small-scale society, recalled their childhood life. Method Individual interviews with 11 adults were analysed using content analysis. Results Living as a child with a parent experiencing mental illness in a small-scale society was described as "living in a paradox" which emerged from three categories: "intergenerational help and caring," "barriers understanding parental illness" and "everybody knows everybody". The children received little or no support from family members, nor from health and education professionals. Discussion In a small-scale society, stigma surrounding mental illness is notable. Families often attempt to conceal mental illness from outsiders with negative or adverse effects on children. Implications for practice Mental healthcare professionals need to consider the needs of children who have parents experiencing mental illness. It is imperative for the well-being of the patients' children to support them in understanding what is happening, turn gossiping in a positive direction and address stigma in the communities.

摘要

未加标注

关于该主题已知的信息有哪些?患有严重精神疾病的父母的子女往往承担着照料负担;他们将疾病带入家庭,有记录表明他们受到污名化、欺凌,并且需要特别关注其患有精神疾病的父母的健康和幸福。然而,对于这些孩子在小规模社会中成长的经历却知之甚少。本研究对现有知识的补充是什么?在小规模社会(法罗群岛)中,与患有严重精神疾病的父母一起生活的孩子的经历是自相矛盾的,生活往往不合理且明显矛盾,但无论如何都是相互关联的。结果表明,“人人都相互了解”,这意味着在小规模社会中很难做到匿名。孩子们熟悉人们会谈论且持有偏见的态度;这导致参与者不断被提醒他们患有精神疾病的父母的不同之处,并且他们觉得自己比同龄人低人一等。在小规模社会中,患有严重精神疾病的父母的子女需要来自亲密家庭以及精神卫生保健专业人员的支持。对实践有何启示?该研究增加了对患有精神疾病的父母的子女必须经历的挑战的认识。精神卫生保健同事之间的对话不仅要围绕照料患病的父母,还要围绕照料孩子及整个家庭的方式,这将加深工作人员对精神卫生保健中以家庭为中心的护理需求的认识。

摘要

引言 据估计,全球23%的儿童与患有精神疾病的父母生活在一起。这些孩子面临情感和心理社会方面的挑战。对于他们在小规模社会中的生活情况知之甚少。目的 探讨在小规模社会中,童年时与患有精神疾病的父母生活在一起的成年人如何回忆他们的童年生活。方法 对11名成年人进行个人访谈,并采用内容分析法进行分析。结果 在小规模社会中,作为孩子与患有精神疾病的父母一起生活被描述为“生活在矛盾之中”,这体现在三个类别中:“代际帮助与照料”、“理解父母疾病的障碍”以及“人人都相互了解”。孩子们很少或几乎没有得到家庭成员、健康和教育专业人员的支持。讨论 在小规模社会中,围绕精神疾病的污名很明显。家庭常常试图向外界隐瞒精神疾病,这对孩子有负面或不利影响。对实践的启示 精神卫生保健专业人员需要考虑患有精神疾病的父母的子女的需求。为了患者子女的幸福,支持他们理解正在发生的事情、将流言蜚语引向积极方向并消除社区中的污名至关重要。

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