University Health Care Research Center, Faculty of Medicine and Health, School of Health Sciences, Örebro University, Örebro, Sweden.
Faculty of Medicine and Health, School of Health Sciences, Örebro University, Örebro, Sweden.
Patient Educ Couns. 2018 Jun;101(6):1137-1142. doi: 10.1016/j.pec.2017.12.020. Epub 2017 Dec 26.
Patient participation is facilitated by patients' ability to take responsibility for and engage in health issues. Yet, there is limited research as to the promotion of these aspects of patient participation in long-term healthcare interactions. This paper describes patient participation as experienced by patients with chronic obstructive pulmonary disease (COPD) or chronic heart failure (CHF); the aim was to describe if and how a self-management programme in primary healthcare influenced patient participation.
Patients who had participated in a self-management programme were interviewed in nine focus groups (36 patients). Data was analysed using qualitative content analysis.
Patients described equality in personal interactions, opportunities to share and discuss, and a willingness to share and learn to facilitate patient participation in a self-management programme. Consequently, patient participation was promoted by a match between the individuals' personal traits and the context.
Features facilitating patient participation by means of sharing and assimilating knowledge and insights should be included in self-management programmes and in the care for patients with COPD and CHF.
A self-management programme can complement regular primary care regarding enhanced understanding of one's disease and support patient participation and the patient's own resources in self-management.
患者参与医疗的能力取决于他们对自身健康问题负责并积极参与的能力。然而，目前针对促进患者在长期医疗保健互动中参与这些方面的研究有限。本文描述了慢性阻塞性肺疾病（COPD）或慢性心力衰竭（CHF）患者的参与情况；目的是描述初级保健中的自我管理计划是否以及如何影响患者的参与。
对参加自我管理计划的患者进行了九组焦点小组访谈（36 名患者）。使用定性内容分析法分析数据。
患者描述了个人互动中的平等、分享和讨论的机会，以及愿意分享和学习，以促进自我管理计划中的患者参与。因此，患者的参与通过个人特质与环境之间的匹配得到促进。
通过分享和吸收知识和见解来促进患者参与的特征应纳入自我管理计划以及 COPD 和 CHF 患者的护理中。
自我管理计划可以补充常规初级保健，以增强对自身疾病的理解，并支持患者的参与和自我管理中的自身资源。
