Hägglund Maria, Scandurra Isabella
Health Informatics Centre, Karolinska Institutet, Stockholm, Sweden.
Informatics, School of Business, Örebro University, Örebro, Sweden.
Stud Health Technol Inform. 2017;245:723-727.
The number of eHealth services for patients is rapidly increasing worldwide. This paper describes the status of a very important eHealth service for patients in Sweden, the Patient Accessible Electronic Health Record (PAEHR). As many countries are facing an introduction of national eHealth services providing health information to the patients, lessons learned from Sweden may improve the deployment and use of PAEHRs and similar eHealth services. Challenges that remain in Sweden relate to local differences in the implementation that lead to fragmentation and unequal access to information. Initiatives have been taken to reconcile some of the problems, e.g. an updated national regulatory framework for PAEHR. To date, evaluations are often performed from a healthcare provider perspective, focusing on aspects that are considered important by healthcare professionals and decision makers. Based on experiences of this nation-wide implementation we argue for the need to also base evaluations of eHealth on the perspective of the patients.
全球范围内，面向患者的电子健康服务数量正在迅速增加。本文介绍了瑞典一项对患者而言非常重要的电子健康服务——患者可访问电子健康记录（PAEHR）的现状。由于许多国家正面临引入向患者提供健康信息的国家电子健康服务的情况，从瑞典吸取的经验教训可能会改善PAEHR及类似电子健康服务的部署和使用。瑞典仍然存在的挑战与实施过程中的地区差异有关，这些差异导致信息碎片化和获取信息不平等。已采取举措来协调其中一些问题，例如更新PAEHR的国家监管框架。迄今为止，评估通常从医疗服务提供者的角度进行，重点关注医疗专业人员和决策者认为重要的方面。基于这一全国范围实施的经验，我们主张电子健康评估也需要基于患者的视角。
