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Patients' Experiences of Web-Based Access to Electronic Health Records in Finland: Cross-sectional Survey.芬兰患者对基于网络的电子健康记录访问的体验:横断面调查。
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Factors Influencing Development and Implementation of Patients' Access to Electronic Health Records-A Comparative Study of Sweden and the Netherlands.影响患者获取电子健康记录的发展与实施的因素——瑞典与荷兰的比较研究
Front Public Health. 2021 Jun 8;9:621210. doi: 10.3389/fpubh.2021.621210. eCollection 2021.
3
Patients, clinicians and open notes: information blocking as a case of epistemic injustice.患者、临床医生与开放病历:作为一种认知不公正情形的信息封锁
J Med Ethics. 2021 May 14;48(10):785-93. doi: 10.1136/medethics-2021-107275.
4
Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey.挪威患者使用在线获取电子健康记录的情况及体验:在线调查结果
J Med Internet Res. 2020 Feb 7;22(2):e16144. doi: 10.2196/16144.
5
Patients' access to health records.患者获取健康记录的途径。
BMJ. 2019 Oct 2;367:l5725. doi: 10.1136/bmj.l5725.
6
Patients Managing Medications and Reading Their Visit Notes: A Survey of OpenNotes Participants.患者管理药物并阅读其就诊记录:对“开放病历”参与者的一项调查
Ann Intern Med. 2019 Jul 2;171(1):69-71. doi: 10.7326/M18-3197. Epub 2019 May 28.
7
OpenNotes After 7 Years: Patient Experiences With Ongoing Access to Their Clinicians' Outpatient Visit Notes.7年后的开放病历:患者持续获取临床医生门诊病历记录的体验
J Med Internet Res. 2019 May 6;21(5):e13876. doi: 10.2196/13876.
8
Patients' Experiences of Accessing Their Electronic Health Records: National Patient Survey in Sweden.患者获取其电子健康记录的体验:瑞典全国患者调查
J Med Internet Res. 2018 Nov 1;20(11):e278. doi: 10.2196/jmir.9492.
9
Tackling Ambulatory Safety Risks Through Patient Engagement: What 10,000 Patients and Families Say About Safety-Related Knowledge, Behaviors, and Attitudes After Reading Visit Notes.通过患者参与解决门诊安全风险:10000 名患者及其家属在阅读就诊记录后对安全相关知识、行为和态度的看法。
J Patient Saf. 2021 Dec 1;17(8):e791-e799. doi: 10.1097/PTS.0000000000000494.
10
A Socio-Technical Analysis of Patient Accessible Electronic Health Records.患者可访问电子健康记录的社会技术分析
Stud Health Technol Inform. 2017;244:3-7.

四国社会技术交叉分析影响患者获取电子健康记录的情境因素:框架评估研究。

Sociotechnical Cross-Country Analysis of Contextual Factors That Impact Patients' Access to Electronic Health Records in 4 European Countries: Framework Evaluation Study.

机构信息

Centre for Empirical Research on Information systems, School of Business, Örebro University, Örebro, Sweden.

Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.

出版信息

J Med Internet Res. 2024 Aug 26;26:e55752. doi: 10.2196/55752.

DOI:10.2196/55752
PMID:39186760
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11384177/
Abstract

BACKGROUND

The NORDeHEALTH project studies patient-accessible electronic health records (PAEHRs) in Estonia, Finland, Norway, and Sweden. Such country comparisons require an analysis of the sociotechnical context of these services. Although sociotechnical analyses of PAEHR services have been carried out in the past, a framework specifically tailored to in-depth cross-country analysis has not been developed.

OBJECTIVE

This study aims to develop and evaluate a method for a sociotechnical analysis of PAEHRs that advances a framework for sociotechnical analysis of eHealth solutions first presented by Sittig and Singh. This first article in a series presents the development of the method and a cross-country comparison of the contextual factors that enable PAEHR access and use.

METHODS

The dimensions of the framework for sociotechnical analysis were thoroughly discussed and extended in a series of workshops with international stakeholders, all being eHealth researchers focusing on PAEHRs. All countries were represented in the working group to make sure that important national perspectives were covered. A spreadsheet with relevant questions related to the studied services and the various dimensions of the sociotechnical framework was constructed and distributed to the 4 participating countries, and the project participants researched various national sources to provide the relevant data for the comparisons in the 10 sociotechnical dimensions.

RESULTS

In total, 3 dimensions were added to the methodology of Sittig and Singh to separate clinical content from features and functions of PAEHRs and demonstrate basic characteristics of the different countries regarding national and regional steering of health care and information and communications technology developments. The final framework contained the following dimensions: metadata; hardware and software computing infrastructure; features and functions; clinical content shared with patients; human-computer interface; people; workflow and communication; the health care organization's internal policies, procedures, and culture; national rules, regulations, and incentives; system measurement and monitoring; and health care system context. The dimensions added during the study mostly concerned background information needed for cross-country comparisons in particular. Several similarities were identified among the compared countries, especially regarding hardware and software computing infrastructure. All countries had, for example, one national access point, and patients are provided a PAEHR automatically. Most of the differences could be identified in the health care system context dimension. One important difference concerned the governing of information and communications technology development, where different levels (state, region, and municipality) were responsible in different countries.

CONCLUSIONS

This is the first large-scale international sociotechnical analysis of services for patients to access their electronic health records; this study compared services in Estonia, Finland, Norway, and Sweden. A methodology for such an analysis was developed and is presented to enable comparison studies in other national contexts to enable future implementations and evaluations of PAEHRs.

摘要

背景

NORDeHEALTH 项目研究了爱沙尼亚、芬兰、挪威和瑞典的患者可访问的电子健康记录 (PAEHR)。此类国家间比较需要对这些服务的社会技术背景进行分析。尽管过去已经对 PAEHR 服务进行了社会技术分析,但尚未开发出专门针对深入跨国分析的框架。

目的

本研究旨在开发和评估一种用于 PAEHR 的社会技术分析方法,该方法推进了 Sittig 和 Singh 首次提出的用于电子卫生解决方案的社会技术分析框架。这一系列的第一篇文章介绍了该方法的开发以及对启用 PAEHR 访问和使用的上下文因素的跨国比较。

方法

与国际利益相关者(均为专注于 PAEHR 的电子卫生研究人员)进行了一系列研讨会,对社会技术分析框架的各个维度进行了深入讨论和扩展。工作组中代表了所有国家,以确保涵盖重要的国家视角。构建了一个带有相关问题的电子表格,这些问题与所研究的服务以及社会技术框架的各个维度有关,并分发给 4 个参与国家,项目参与者研究了各种国家来源,为 10 个社会技术维度的比较提供了相关数据。

结果

总共向 Sittig 和 Singh 的方法添加了 3 个维度,以将临床内容与 PAEHR 的功能和特性区分开来,并展示不同国家在国家和地区医疗保健以及信息和通信技术发展方面的基本特征。最终框架包含以下维度:元数据;硬件和软件计算基础设施;功能和特性;与患者共享的临床内容;人机界面;人员;工作流程和沟通;医疗保健组织的内部政策、程序和文化;国家规则、法规和激励措施;系统测量和监测;以及医疗保健系统背景。研究过程中添加的维度主要是特定于跨国比较的背景信息。在比较的国家中发现了一些相似之处,特别是在硬件和软件计算基础设施方面。例如,所有国家都有一个国家访问点,并且自动向患者提供 PAEHR。大多数差异可以在医疗保健系统背景维度中识别出来。一个重要的区别涉及信息和通信技术发展的治理,不同级别(国家、地区和市)在不同国家负责。

结论

这是第一次对患者访问其电子健康记录的服务进行大规模的国际社会技术分析;本研究比较了爱沙尼亚、芬兰、挪威和瑞典的服务。开发了一种用于此类分析的方法,并将其呈现出来,以便能够在其他国家背景下进行比较研究,从而实现 PAEHR 的未来实施和评估。