Black Dog Institute, Randwick, Sydney, NSW, Australia.
UNSW Australia, Sydney, NSW, Australia.
Health Expect. 2018 Jun;21(3):668-677. doi: 10.1111/hex.12662. Epub 2018 Jan 10.
Young people with type 1 diabetes are at increased risk of mental disorders. Whereas treatment need is high, difficulty recruiting young people with type 1 diabetes into psychosocial studies complicates development, testing and dissemination of these interventions.
Interviews with young adults with type 1 diabetes were conducted to examine attitudes towards mental health and mental health research, including barriers and motivators to participation in mental health studies and preferred sources of mental health support. The interviews were audio-taped, transcribed and evaluated via thematic analysis.
Young adults with type 1 diabetes were recruited via social media channels of 3 advocacy organizations. A total of 31 young adults (26 females and 5 males) with an average age of 22 years were interviewed between October 2015 and January 2016.
Participants were largely unaware of their increased vulnerability to common mental health problems and knew little about mental health research. Major barriers to participation included perceived stigma and lifestyle issues and low levels of trust in researchers. Opportunities to connect with peers and help others were described as key motivators. Psychological distress was considered normal within the context of diabetes. A need for some level of human contact in receiving psychosocial support was expressed.
Findings provide valuable insights into the complex dynamics of engaging young adults with type 1 diabetes in mental health studies. Interviewees provided practical suggestions to assist investigation and delivery of psychosocial interventions for this vulnerable group.
患有 1 型糖尿病的年轻人患精神障碍的风险增加。尽管治疗需求很高，但由于难以招募到患有 1 型糖尿病的年轻人参与心理社会研究，因此这些干预措施的开发、测试和传播变得复杂。
对患有 1 型糖尿病的年轻人进行访谈，以了解他们对心理健康和心理健康研究的态度，包括参与心理健康研究的障碍和动机，以及对心理健康支持的偏好来源。采访通过主题分析进行录音、转录和评估。
通过 3 个宣传组织的社交媒体渠道招募年轻的 1 型糖尿病患者。共有 31 名平均年龄为 22 岁的年轻人（26 名女性和 5 名男性）在 2015 年 10 月至 2016 年 1 月期间接受了采访。
参与者对他们易患常见心理健康问题的风险认识不足，对心理健康研究也知之甚少。参与的主要障碍包括感知到的耻辱感和生活方式问题，以及对研究人员的信任度低。与同龄人建立联系和帮助他人的机会被描述为关键的动机。在糖尿病的背景下，心理困扰被认为是正常的。在接受心理社会支持方面，需要一定程度的人际接触。
研究结果为了解参与 1 型糖尿病年轻人心理健康研究的复杂动态提供了有价值的见解。受访者提出了切实可行的建议，以协助对这一弱势群体进行心理社会干预的调查和实施。
