a Rehabilitation Science Institute , University of Toronto , Toronto , Canada.
b Bloorview Research Institute , Holland Bloorview Kids Rehabilitation Hospital , Toronto , Canada.
Disabil Rehabil. 2019 Jun;41(11):1331-1342. doi: 10.1080/09638288.2018.1425743. Epub 2018 Jan 15.
The purpose of this research was to explore the experiences of youth and young adults with acquired brain injury as they transition towards work-related roles. Little is known about employment experiences among this age group. Understanding their perspectives can inform programs and clinical practice.
A descriptive qualitative design, including semi-structured interviews with 14 participants (8 females; 6 males) was used. Interviews were transcribed verbatim and analyzed using an open-coding, thematic approach.
Three major themes emerged related to the experience of work-related roles: (1) getting to know the new me; (2) navigating support systems; and (3) taking control of my experience. Some participants used coping strategies to acquire and/or maintain work-related roles, while others felt limited by their condition.
A variety of work-related roles, people, and environments directly and indirectly influenced the work-related transition of youth and young adults with acquired brain injury. Individuals expressed the importance of acquired brain injury awareness in informing others about their impairments. In fact, a lack of acquired brain injury awareness was often a main reason for receiving less than adequate support and accommodations. Without an understanding of acquired brain injury, people in the lives of these individuals were unable to perceive the legitimacy of acquired brain injury-related impairments. Implications for rehabilitation The purpose of this study is to understand the experiences of youth and young adults with acquired brain injury as they transition into work-related roles. Using these experiences as a guideline can promote acquired brain injury awareness, and contribute to how current interventions are designed and delivered. Clinicians should ensure that youth and young adults with acquired brain injury have access to the resources they need to maximize their independence. Healthcare professionals can play a pivotal role in relaying important acquired brain injury-related education, implementing suitable treatment plans, and providing them with effective tips to help them through their transition. A healthy transition to work-related roles should include ample social support and communication, acquired brain injury-related information that informs the community of acquired brain injury impairments, needs, and recovery trajectory, as well as adequate and consistent coordination within and between the person and the environment.
本研究旨在探讨患有后天性脑损伤的青年和年轻成年人在向与工作相关的角色过渡时的经历。对于这一年龄组的就业经历知之甚少。了解他们的观点可以为项目和临床实践提供信息。
采用描述性定性设计，包括对 14 名参与者（8 名女性；6 名男性）进行半结构式访谈。访谈逐字转录，并采用开放式编码、主题方法进行分析。
与工作相关角色的体验相关的三个主要主题出现：（1）了解新的自我；（2）驾驭支持系统；（3）掌控自己的体验。一些参与者使用应对策略来获得和/或维持与工作相关的角色，而另一些参与者则感到自己的病情受限。
各种与工作相关的角色、人和环境直接和间接地影响了后天性脑损伤的青年和年轻成年人的工作相关过渡。个人表示，后天性脑损伤意识在告知他人自己的损伤方面非常重要。事实上，缺乏后天性脑损伤意识往往是获得的支持和适应不足的主要原因。如果不了解后天性脑损伤，这些人的生活中的人就无法感知后天性脑损伤相关损伤的合法性。
对康复的影响本研究的目的是了解患有后天性脑损伤的青年和年轻成年人在过渡到与工作相关的角色时的经历。将这些经验作为指导，可以提高后天性脑损伤意识，并有助于设计和提供当前的干预措施。临床医生应确保患有后天性脑损伤的青年和年轻成年人能够获得最大限度地实现独立性所需的资源。医疗保健专业人员可以在传达重要的后天性脑损伤相关教育、实施适当的治疗计划以及为他们提供有效的提示以帮助他们过渡方面发挥关键作用。向与工作相关的角色的健康过渡应包括充足的社会支持和沟通、让社区了解后天性脑损伤损伤、需求和恢复轨迹的后天性脑损伤相关信息，以及在人与环境之间以及内部进行充分和一致的协调。
