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探究健康认知如何影响脊髓损伤成年人的参与度和自主性。

Examining How the Perception of Health Can Impact Participation and Autonomy Among Adults with Spinal Cord Injury.

作者信息

Piatt Jennifer A, Van Puymbroeck Marieke, Zahl Melissa, Rosenbluth Jeffrey P, Wells Mary Sara

机构信息

Indiana University, School of Public Health, Bloomington, Indiana.

Clemson University.

出版信息

Top Spinal Cord Inj Rehabil. 2016 Summer;22(3):165-172. doi: 10.1310/sci2203-165.

DOI:10.1310/sci2203-165
PMID:29339858
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4981011/
Abstract

Studies examining participation as defined by the International Classification of Functioning, Disability and Health (ICF) as well as autonomy among the spinal cord injury population (SCI) are only starting to emerge. Little research has looked at how this population perceives their health status and the role this plays in active participation within their lives. This exploratory study was developed to determine whether the perception of health has an impact on participation and autonomy among adults with SCI. A convenience sample of adults with SCI currently receiving outpatient services from a rehabilitation hospital completed the online questionnaire. Forty-two subjects responded and were categorized into 2 groups: Group 1, positive perceived health, and Group 2, negative perceived health. The sample completed the Impact on Autonomy and Participation (IPA) that has 5 subscales (autonomy indoors, family role, autonomy outdoors, social life, and work/education) and demographic questions. Multivariate analysis of variance (MANOVA) revealed that perceived health had a significant impact on family roles, autonomy outdoors, social life, and work/education. Perceived health did not have a significant impact on autonomy indoors. The perception of health may have an impact on participation and autonomy within the areas of family role, outdoors, work/education, and social life. Implications for rehabilitation are included.

摘要

研究脊髓损伤人群(SCI)中按照《国际功能、残疾和健康分类》(ICF)所定义的参与度以及自主性的研究才刚刚开始出现。很少有研究关注该人群如何看待自身健康状况以及这在他们积极参与生活中所起的作用。这项探索性研究旨在确定健康认知是否会对成年脊髓损伤患者的参与度和自主性产生影响。一个便利样本,即目前正在一家康复医院接受门诊服务的成年脊髓损伤患者,完成了在线问卷。42名受试者做出了回应,并被分为两组:第1组,健康认知积极;第2组,健康认知消极。样本完成了包含5个分量表(室内自主性、家庭角色、室外自主性、社交生活以及工作/教育)和人口统计学问题的自主性和参与度影响量表(IPA)。多变量方差分析(MANOVA)显示,健康认知对家庭角色、室外自主性、社交生活以及工作/教育有显著影响。健康认知对室内自主性没有显著影响。健康认知可能会对家庭角色、室外、工作/教育以及社交生活领域的参与度和自主性产生影响。文中还包含了对康复的启示。

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J Spinal Cord Med. 2016 Nov;39(6):693-698. doi: 10.1080/10790268.2015.1123845. Epub 2015 Dec 15.
2
Social and community participation following spinal cord injury: a critical review.脊髓损伤后的社会与社区参与:一项批判性综述
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Cardiovascular risk factors have larger impact on endothelial function in self-reported healthy women than men in the HUNT3 Fitness study.在HUNT3健康研究中,心血管危险因素对自我报告健康的女性内皮功能的影响比对男性的影响更大。
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Disabil Rehabil. 2015;37(2):144-50. doi: 10.3109/09638288.2014.913703. Epub 2014 Apr 30.
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Spinal cord injury facts and figures at a glance.脊髓损伤事实与数据概览。
J Spinal Cord Med. 2013 Jan;36(1):1-2. doi: 10.1179/1079026813Z.000000000136.
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