Piatt Jennifer A, Van Puymbroeck Marieke, Zahl Melissa, Rosenbluth Jeffrey P, Wells Mary Sara
Indiana University, School of Public Health, Bloomington, Indiana.
Clemson University.
Top Spinal Cord Inj Rehabil. 2016 Summer;22(3):165-172. doi: 10.1310/sci2203-165.
Studies examining participation as defined by the International Classification of Functioning, Disability and Health (ICF) as well as autonomy among the spinal cord injury population (SCI) are only starting to emerge. Little research has looked at how this population perceives their health status and the role this plays in active participation within their lives. This exploratory study was developed to determine whether the perception of health has an impact on participation and autonomy among adults with SCI. A convenience sample of adults with SCI currently receiving outpatient services from a rehabilitation hospital completed the online questionnaire. Forty-two subjects responded and were categorized into 2 groups: Group 1, positive perceived health, and Group 2, negative perceived health. The sample completed the Impact on Autonomy and Participation (IPA) that has 5 subscales (autonomy indoors, family role, autonomy outdoors, social life, and work/education) and demographic questions. Multivariate analysis of variance (MANOVA) revealed that perceived health had a significant impact on family roles, autonomy outdoors, social life, and work/education. Perceived health did not have a significant impact on autonomy indoors. The perception of health may have an impact on participation and autonomy within the areas of family role, outdoors, work/education, and social life. Implications for rehabilitation are included.
研究脊髓损伤人群(SCI)中按照《国际功能、残疾和健康分类》(ICF)所定义的参与度以及自主性的研究才刚刚开始出现。很少有研究关注该人群如何看待自身健康状况以及这在他们积极参与生活中所起的作用。这项探索性研究旨在确定健康认知是否会对成年脊髓损伤患者的参与度和自主性产生影响。一个便利样本,即目前正在一家康复医院接受门诊服务的成年脊髓损伤患者,完成了在线问卷。42名受试者做出了回应,并被分为两组:第1组,健康认知积极;第2组,健康认知消极。样本完成了包含5个分量表(室内自主性、家庭角色、室外自主性、社交生活以及工作/教育)和人口统计学问题的自主性和参与度影响量表(IPA)。多变量方差分析(MANOVA)显示,健康认知对家庭角色、室外自主性、社交生活以及工作/教育有显著影响。健康认知对室内自主性没有显著影响。健康认知可能会对家庭角色、室外、工作/教育以及社交生活领域的参与度和自主性产生影响。文中还包含了对康复的启示。