血管炎对就业和收入的影响。
Impact of vasculitis on employment and income.
机构信息
Division of Rheumatology, Western University, London, Ontario, Canada.
Health Informatics Institute, University of South Florida, Tampa, FL, USA.
出版信息
Clin Exp Rheumatol. 2018 Mar-Apr;36 Suppl 111(2):58-64. Epub 2018 Jan 10.
OBJECTIVES
Work disability associated with rheumatic diseases accounts for a substantial financial burden. However, few studies have investigated disability among patients with vasculitis. The purpose of this study was to examine the impact of vasculitis on patient employment and income.
METHODS
Patients enrolled in the Vasculitis Clinical Research Consortium (VCRC) Patient Contact Registry, living in the USA or Canada, and followed for >1 year post-diagnosis, participated in an online survey-based study.
RESULTS
421 patients with different systemic vasculitides completed the survey between June and December 2015. The majority of patients were female (70%) and Caucasian (90%); granulomatosis with polyangiitis (GPA) was the most common type of vasculitis (49%), and the mean age at the time of diagnosis was 53 years. At the time of their diagnosis of vasculitis 76% of patients were working a paid job, 6% were retired, and 2% were on disability. Over the course of their disease, and with a mean follow-up of 8±6.4 years post-diagnosis, 26% of participants became permanently work disabled or had to retire early due to vasculitis. Variables that were independently associated with permanent work disability included work physicality, less supportive work environment, and symptoms such as respiratory disease, pain, and cognitive impairment. Overall, patients reported a mean productivity loss of 6.9% and income was reduced by a median of 45%.
CONCLUSIONS
Due to their vasculitis, patients frequently suffer substantial limitations in work and productivity, and personal income loss.
目的
与风湿性疾病相关的工作残疾会造成巨大的经济负担。然而，很少有研究调查过血管炎患者的残疾情况。本研究的目的是研究血管炎对患者就业和收入的影响。
方法
参加血管炎临床研究联合会（VCRC）患者联络登记处、居住在美国或加拿大且在诊断后随访>1 年的患者参与了一项基于在线调查的研究。
结果
2015 年 6 月至 12 月期间，421 名患有不同系统性血管炎的患者完成了调查。大多数患者为女性（70%）和白种人（90%）；肉芽肿性多血管炎（GPA）是最常见的血管炎类型（49%），诊断时的平均年龄为 53 岁。在诊断血管炎时，76%的患者正在从事有偿工作，6%的患者已经退休，2%的患者因血管炎而残疾。在他们患病期间，平均随访 8±6.4 年后，26%的参与者因血管炎而永久丧失工作能力或不得不提前退休。与永久工作残疾相关的独立变量包括工作体力、工作环境支持度较低，以及呼吸疾病、疼痛和认知障碍等症状。总的来说，患者报告平均生产力损失 6.9%，收入中位数减少 45%。
结论
由于血管炎，患者经常在工作和生产力方面受到严重限制，并导致个人收入损失。
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