Pravettoni Gabriella, Cutica Ilaria, Righetti Simona, Mazzocco Ketti
Department of Oncology and Hematology, University of Milan.
Applied Research Division for Cognitive and Psychological Science, European Institute of Oncology, Milan, Italy.
J Healthc Leadersh. 2016 Dec 7;8:121-125. doi: 10.2147/JHL.S115434. eCollection 2016.
The aim of this study was to review the experiences of direct involvement in patient survivorship for treatment and research.
This is a narrative-focused review of the following two recent experiences of patient involvement: the Chordoma Foundation and the Triple Negative Breast Cancer Foundation.
These two examples represent concrete experiences that patients have built to favor a real involvement in the care and treatment of tumors. These experiences are profoundly modifying how cancer research is conducted and draw attention to the psychosocial dimensions of health care.
These examples represent the new scenario in which modern medicine faces completely new challenges, copes with new needs, and cooperates with new health care professionals.
Involving patients in a new perspective raises practical and ethical challenges for organizations to work together, for health providers to be professionally skilled and for the government to promote safeguarding policies.
本研究旨在回顾直接参与患者生存治疗与研究的经历。
这是一篇以叙述为重点的综述，涉及以下两项近期患者参与的经历：脊索瘤基金会和三阴性乳腺癌基金会。
这两个例子代表了患者为切实参与肿瘤护理和治疗所积累的具体经验。这些经验正在深刻改变癌症研究的开展方式，并使人们关注医疗保健的社会心理层面。
这些例子代表了现代医学面临全新挑战、应对新需求并与新的医疗保健专业人员合作的新情况。
从新的视角让患者参与其中，给各组织协同合作、医疗服务提供者具备专业技能以及政府推行保障政策带来了实际和伦理方面的挑战。
