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预计生存期为数周的癌症患者的尊严。实施患者尊严量表的因素结构和尊严评估,以进行以患者为中心的临床干预:一项横断面研究。

Dignity in cancer patients with a life expectancy of a few weeks. Implementation of the factor structure of the Patient Dignity Inventory and dignity assessment for a patient-centered clinical intervention: A cross-sectional study.

机构信息

Psycho-Oncology Unit, Department of Neuroscience,University of Turin,"Città della Salute e della Scienza" Hospital,Turin,Italy.

出版信息

Palliat Support Care. 2018 Dec;16(6):648-655. doi: 10.1017/S147895151700102X. Epub 2018 Feb 7.

Abstract

OBJECTIVE

Hospice is a favored setting for dignity care. Studies on dignity dimension in end-of-life patients are growing. The Patient Dignity Inventory (PDI) is a tool that can lead to interesting information on dignity-related aspects of suffering. The study aimed to investigate dignity among end-of-life cancer patients, by examining the Italian version of the PDI factor structure and assessing the relationship between dignity and other patients' psychosocial and spiritual variables to improve a patient-centered clinical practice.

METHOD

This is a cross-sectional study. Data were collected using a battery of self-administered validated rating scales. The sample included 127 hospice patients with a life expectancy of a few weeks and a Karnofsky Performance Status ≤40. Factor structure and concurrent validity of PDI and correlations between dignity and anxious and depressive symptomatology, quality of life, demoralization, personal coping styles, spiritual well-being, and spiritual daily experience were analyzed.ResultFactor analysis highlighted a five-factor solution, accounting for 60% of the overall variance. The factors were labeled Psychological Distress, Social Support, Physical Symptoms and Dependency, Existential Distress, and Loss of Purpose/Meaning. Dignity assessment evidenced that self-blame coping style, emotional and physical well-being, and depression were the loss of dignity significant predictors (R2 = 0.605; p < 0.01).Significance of resultsThe results point out the intercultural validity of the PDI and empower an accurate detection of dignity-related distress sources in the daily clinical practice. Personality traits seem to have an active role in the loss of dignity, whereas spirituality is confirmed to be positively involved in dignity enhancement.

摘要

目的

临终关怀是尊严护理的首选场所。关于终末期患者尊严维度的研究越来越多。患者尊严量表(PDI)是一种可以提供有关尊严相关痛苦方面的有趣信息的工具。本研究旨在通过考察 PDI 的意大利版本的因子结构,以及评估尊严与其他患者心理社会和精神变量之间的关系,来研究终末期癌症患者的尊严状况,以改善以患者为中心的临床实践。

方法

这是一项横断面研究。使用一系列自我管理的经过验证的评分量表收集数据。样本包括 127 名预计生存时间为数周且卡诺夫斯基表现状态≤40 的临终关怀患者。分析了 PDI 的因子结构和同时效度以及尊严与焦虑和抑郁症状、生活质量、沮丧、个人应对方式、精神幸福感和精神日常体验之间的相关性。

结果

因子分析突出了一个五因素解决方案,占总方差的 60%。这些因素分别命名为心理困扰、社会支持、身体症状和依赖性、存在困扰和失去目标/意义。尊严评估表明,自责应对方式、情感和身体幸福感以及抑郁是尊严丧失的显著预测因素(R2 = 0.605;p < 0.01)。

结果的意义

研究结果表明 PDI 的跨文化有效性,并在日常临床实践中能够准确地检测到与尊严相关的痛苦来源。人格特质似乎在尊严丧失中起积极作用,而灵性被证实与尊严增强有关。

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