Stichting Tools patient empowerment, Bussum, the Netherlands.
Research Centre for Autonomy and Participation for People with Chronic Illnesses, Zuyd University of Applied Sciences, Heerlen, the Netherlands.
Health Expect. 2018 Aug;21(4):752-763. doi: 10.1111/hex.12671. Epub 2018 Feb 8.
Acquiring the theoretical and practical knowhow of conducting patient and public involvement (PPI) in research is not part of the traditional curriculum of researchers. Zuyd University of Applied Sciences and Huis voor de Zorg, a regional umbrella patient organization, therefore started a 1.5-year coaching programme.
To establish a community of practice by developing a PPI coaching programme for senior and junior health services researchers of Zuyd University. The context consisted of research projects conducted by the participants.
A participatory action research methodology. Data were collected from reports of thematic group meetings and individual sessions with participants, field notes and regular reflection meetings with the project team. Data were analysed by reflexive deliberation.
The programme comprised a kick-off meeting (52 attendees), followed by 7 group meetings with 11 junior and 9 senior researchers. The project team constructed a serious game based on the concept of the participation ladder. Questions and concerns differed for junior and senior researchers, and separate tailored meetings were organized for both groups. Between group meetings, participants received individual assignments. Group meetings were accompanied by individual coaching sessions to provide tailor-made feedback. The programme concluded with a combined meeting with all stakeholders.
Building a community of PPI practice through action research facilitates the development of a coaching programme that fosters social learning, empowerment and the development of a shared identity concerning PPI. The role and responsibilities of senior researchers should be distinguished from those of junior researchers.
在传统的研究人员课程中，并没有涉及进行患者和公众参与（PPI）研究的理论和实践知识。因此，祖伊德应用科学大学和豪斯福利茨医疗保健组织（Huis voor de Zorg），一个区域伞式患者组织，启动了一个为期 1.5 年的辅导计划。
通过为祖伊德大学的高级和初级卫生服务研究人员开发 PPI 辅导计划，建立一个实践社区。该计划的背景是参与者进行的研究项目。
采用参与式行动研究方法。从专题小组会议和与参与者的个别会议报告、现场记录和与项目团队的定期反思会议中收集数据。通过反思性审议对数据进行分析。
该计划包括一次启动会议（52 人参加），随后是 7 次小组会议，有 11 名初级和 9 名高级研究人员参加。项目团队基于参与阶梯的概念构建了一个严肃游戏。初级和高级研究人员的问题和关注点不同，因此为两组分别组织了单独的定制会议。在小组会议之间，参与者收到了个人作业。小组会议由个别辅导会议陪同，提供定制反馈。该计划以所有利益相关者的联合会议结束。
通过行动研究建立 PPI 实践社区有助于制定辅导计划，促进社会学习、赋权和发展关于 PPI 的共同认同。高级研究人员的角色和责任应与初级研究人员区分开来。
