Aschauer-Wallner Stephanie, Mattiassich Georg, Aigner Ludwig, Resch Herbert
1Department of Orthopedics and Traumatology, Spinal Cord Injury and Tissue Regeneration Center Salzburg, Paracelsus Medical University Salzburg, Salzburg, Austria.
2Trauma Center Linz, Teaching Hospital of the Paracelsus Medical University Salzburg, Linz, Austria.
Spinal Cord Ser Cases. 2017 Oct 23;3:17076. doi: 10.1038/s41394-017-0006-y. eCollection 2017.
Establishing the structure of a prospective spinal cord injury (SCI) patient registry.
To develop a registry for patients with traumatic spinal cord injury (tSCI) in Austria as a base for addressing research questions, improving patient outcomes, and establishing a platform for future clinical trials.
Coordinating institution: Paracelsus Medical University Salzburg, Austria; participating partners are located in nine states in Austria.
The Austrian Spinal Cord Injury Study (ASCIS) collects longitudinal data on simple forms within a 7-stage follow-up examination timeline.
The implementation of the ASCIS in 2012 created the first nationwide SCI patient registry in Austria. ASCIS is currently implemented in 17 trauma hospitals in 9 Austrian states, and over 150 individuals with acute tSCI have been registered to date. As in Austria, the structure of the health-care system does not involve a specialized SCI center covering the primary health care and the rehabilitation care, major challenges have to be overcome to involve all participating primary centers and rehabilitation centers, which perform tSCI patient care, for ASCIS. Through implementing ASCIS, a network of SCI clinicians and researchers, which is now beginning to support translational research and to initiate clinical trials for patients with tSCI, has formed.
ASCIS is uniquely positioned in Austria to capture detailed information from the early acute to the chronic phases of tSCI, to provide this information also to bigger and translational settings, and to connect researchers and clinicians to facilitate clinical research on tSCI.
建立前瞻性脊髓损伤（SCI）患者登记系统的结构。
为奥地利创伤性脊髓损伤（tSCI）患者建立一个登记系统，作为解决研究问题、改善患者预后以及建立未来临床试验平台的基础。
协调机构：奥地利萨尔茨堡帕拉塞尔苏斯医科大学；参与伙伴分布在奥地利的九个州。
奥地利脊髓损伤研究（ASCIS）在一个7阶段的随访检查时间线内，通过简单表格收集纵向数据。
2012年实施的ASCIS创建了奥地利首个全国性的SCI患者登记系统。ASCIS目前在奥地利9个州的17家创伤医院实施，迄今已有超过150名急性tSCI患者登记。与奥地利情况相同，医疗保健系统的结构中没有涵盖初级医疗保健和康复护理的专门SCI中心，要让所有参与tSCI患者护理的初级中心和康复中心参与ASCIS，必须克服重大挑战。通过实施ASCIS，现已形成了一个SCI临床医生和研究人员网络，该网络如今开始支持转化研究并启动针对tSCI患者的临床试验。
ASCIS在奥地利具有独特地位，能够收集从tSCI的早期急性期到慢性期的详细信息，还能将这些信息提供给更大规模和转化性的研究环境，并连接研究人员和临床医生以促进tSCI的临床研究。
