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确定开发银屑病自我管理应用程序的培训和信息组件。

Identifying training and informational components to develop a psoriasis self- management application.

作者信息

Safdari Reza, Firoz Alireza, Masoorian Hoorie

机构信息

Health Information Department, Health Information Management Research Center, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran.

Center of Research and Training in Skin and Leprosy, Tehran University of Medical Sciences, Tehran, Iran.

出版信息

Med J Islam Repub Iran. 2017 Oct 1;31:67. doi: 10.14196/mjiri.31.67. eCollection 2017.

Abstract

Psoriasis is a complex disease with lifelong emotional and social consequences for affected patients. It also reduces the patients' quality of life and requires a long-term management. Therefore, in addition to appropriate treatment of the disease, selfmanagement strategies to improve patient health and quality of life are essential. On the other hand, smartphone-based applications alter the way people interact with health care and public health systems. This study aimed at identifying training and informational components to develop a psoriasis self- management application. This descriptive-analytic study was conducted on 100 patients with psoriasis and 26 dermatologists who were selected randomly, using Morgan table. The data were collected using a researcher- made questionnaire, which included demographic and clinical information, lifestyle training and management, and application capabilities in psoriasis self-management. A group of experts and a test-retest method were used to confirm the validity and reliability of the questionnaire, respectively. The mean scores for demographic and clinical information, lifestyle training and management, and application capabilities in self-management were 80.55%, 85.7%, and 88.8% from the patients' perspective, and 83.7%, 71%, and 75% from the specialists' viewpoint, respectively. Determining self-management components by patients as persons who are suffering from the disease and physicians as specialists in the field will be helpful in efficient psoriasis self-management. It is more likely that self-reliant patients, who are aware of the benefits and risks of their disease management application, will follow their treatment plan and pursue the management of their disease more seriously.

摘要

银屑病是一种复杂的疾病,会给患者带来终身的情感和社会影响。它还会降低患者的生活质量,需要长期管理。因此,除了对疾病进行适当治疗外,改善患者健康和生活质量的自我管理策略至关重要。另一方面,基于智能手机的应用程序改变了人们与医疗保健和公共卫生系统互动的方式。本研究旨在确定培训和信息内容,以开发一款银屑病自我管理应用程序。这项描述性分析研究对100名银屑病患者和26名皮肤科医生进行,他们使用摩根表随机选取。数据通过研究者编制的问卷收集,问卷包括人口统计学和临床信息、生活方式培训与管理以及银屑病自我管理中的应用能力。分别采用一组专家和重测法来确认问卷的效度和信度。从患者角度看,人口统计学和临床信息、生活方式培训与管理以及自我管理中应用能力的平均得分分别为80.55%、85.7%和88.8%,从专家角度看分别为83.7%、71%和75%。由患有该疾病的患者以及作为该领域专家的医生来确定自我管理内容,将有助于高效地进行银屑病自我管理。了解疾病管理应用程序利弊的自主患者更有可能遵循他们的治疗计划,并更认真地进行疾病管理。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/04d5/5804427/e0c281791e3e/mjiri-31-67-g001.jpg

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