Heratizadeh A, Werfel T, Gieler U, Kupfer J
Abteilung für Immundermatologie und experimentelle Allergologie, Klinik für Dermatologie, Allergologie und Venerologie, Medizinische Hochschule Hannover, Carl-Neuberg-Str. 1, 30625, Hannover, Deutschland.
Klinik für Psychosomatik und Psychotherapie, Justus-Liebig-Universität Gießen und UKGM, Ludwigstr. 76, 35392, Gießen, Deutschland.
Hautarzt. 2018 Mar;69(3):225-231. doi: 10.1007/s00105-018-4125-6.
Atopic dermatitis (AD) represents a chronic inflammatory skin disease showing a 1-year prevalence of 2-3% during adulthood. In a national randomized, controlled multicenter study initiated by the "Arbeitsgemeinschaft Neurodermitisschulung im Erwachsenenalter" (ARNE, Working Group on Educational Training for Adults with Atopic Dermatitis) a program for structured patient education conducted by a multiprofessional team was developed and evaluated. At 1‑year follow-up, coping behavior with respect to itch (assessed by the "Juckreiz-Kognitions-Fragebogen", p < 0.001) and in quality of life (Skindex-29, p < 0.001) significantly improved in patients who had participated in this 12 h patient educational program (n = 168) compared to the waiting control group (n = 147). Moreover, the training led to a significantly greater reduction in disease severity (SCORAD Index, p < 0.001). In this first randomized, controlled multicenter study on effects of patient education in adulthood AD, significant beneficial effects on both psychosocial parameters and the disease severity could be demonstrated.
特应性皮炎(AD)是一种慢性炎症性皮肤病,在成年人中的1年患病率为2%-3%。在由“成人特应性皮炎教育培训工作组”(ARNE)发起的一项全国性随机对照多中心研究中,开发并评估了一个由多专业团队开展的结构化患者教育项目。在1年随访时,与等待对照组(n = 147)相比,参与这个12小时患者教育项目的患者(n = 168)在瘙痒应对行为(通过“瘙痒认知问卷”评估,p<0.001)和生活质量(Skindex-29,p<0.001)方面有显著改善。此外,该培训导致疾病严重程度显著降低(SCORAD指数,p<0.001)。在这项关于成人AD患者教育效果的首个随机对照多中心研究中,可证明对心理社会参数和疾病严重程度均有显著有益影响。