Witvliet M J, van Gasteren S, van den Hondel D, Hartman E, van Heurn Lwe, van der Steeg Afw
Paediatric Surgical Center of Amsterdam, Emma Children's Hospital, AMC and VU University Medical Center, Amsterdam, The Netherlands; Department of Paediatric Surgery-Wilhelmina Children's Hospital, Utrecht, The Netherlands.
Tilburg University, Center of Research on Psychological and Somatic disorders [CoRPS], Department of Medical and Clinical Psychology, Tilburg, The Netherlands.
J Pediatr Surg. 2018 Aug;53(8):1555-1559. doi: 10.1016/j.jpedsurg.2018.01.010. Epub 2018 Jan 31.
The aim of this study was to examine the prevalence of sexual dysfunction and distress and to assess whether sexual functioning could be predicted by psychosocial factors in childhood and adolescence in patients with an anorectal malformation or Hirschsprung disease.
In 1998 patients completed a psychosocial questionnaire: The Self-Perception profile. To assess the prevalence of sexual distress and sexual functioning in adulthood (2015) the Female Sexual Function Index (FSFI), The Female Sexual Distress Scale (FSDS) and the International Index of Erectile Functioning (IIEF) were used.
In total 74 patients returned the questionnaires (26.2%). 36.8% of women reported sexual dysfunction and 45% experienced sexual distress. In our male sample 8.8% reported mild to moderate erectile dysfunction. In females perceived self-competence in adolescence was associated with sexual distress (p<.01). In male adolescents associations were found between perceived self-competence in romantic relations (p<.01) and in close friendships (p<.05) and sexual desire in adulthood.
Pediatric surgeons should be more aware of sexual problems patients may face at older age as a result of their congenital disease and treatment. More standardized care and follow-up are needed. Prognosis study-Level II.
本研究旨在调查性功能障碍和困扰的患病率，并评估肛门直肠畸形或先天性巨结肠病患者童年和青春期的心理社会因素是否能够预测其性功能。
1998年患者完成了一份心理社会调查问卷：自我认知概况。为评估成年期（2015年）性困扰和性功能的患病率，使用了女性性功能指数（FSFI）、女性性困扰量表（FSDS）和国际勃起功能指数（IIEF）。
共有74名患者回复了问卷（26.2%）。36.8%的女性报告存在性功能障碍，45%经历过性困扰。在我们的男性样本中，8.8%报告有轻度至中度勃起功能障碍。在女性中，青春期的自我能力认知与性困扰相关（p<0.01）。在男性青少年中，浪漫关系（p<0.01）和亲密友谊（p<0.05）中的自我能力认知与成年后的性欲之间存在关联。
小儿外科医生应更加意识到患者由于先天性疾病及其治疗可能在年长时面临的性问题。需要更标准化的护理和随访。预后研究——二级。
