Brigo Francesco, Lattanzi Simona, Giussani Giorgia, Tassi Laura, Pietrafusa Nicola, Galimberti Carlo Andrea, Nardone Raffaele, Bragazzi Nicola Luigi, Mecarelli Oriano
Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona, Verona, Italy; Hospital Franz Tappeiner, Department of Neurology, Merano, Italy.
Marche Polytechnic University, Neurological Clinic, Department of Experimental and Clinical Medicine, Ancona, Italy.
Epilepsy Behav. 2018 Apr;81:119-122. doi: 10.1016/j.yebeh.2018.01.037. Epub 2018 Feb 14.
Wikipedia is the most commonly accessed source of health information by both healthcare professionals and the lay public worldwide. We aimed to evaluate information-seeking behavior of Internet users searching the Italian Wikipedia for articles related to epilepsy and its treatment. Using Pageviews Analysis, we assessed the total and mean monthly views of articles from the Italian Wikipedia devoted to epilepsy, epileptic syndromes, seizure type, and antiepileptic drugs (AEDs) from January 1, 2015 to October 31, 2017. We compared the views of the article on epilepsy with those of articles focusing on Alzheimer's disease, migraine, multiple sclerosis, syncope, and stroke and adjusted all results for crude disease prevalence. With the only exception of the article on multiple sclerosis, the adjusted views for the Italian Wikipedia article on epilepsy were higher than those for the other neurological disorders. The most viewed articles on seizure type were devoted to tonic-clonic seizure, typical absence seizure, tonic convulsive seizures, and clonic convulsive seizures. The most frequently accessed articles on epilepsy syndromes were about temporal lobe epilepsy and Lennox-Gastaut syndrome. The most frequently viewed articles on AEDs were devoted to valproic acid, carbamazepine, and levetiracetam. Wikipedia searches seem to mirror patients' fears and worries about epilepsy more than its actual epidemiology. The ultimate reasons for searching online remain unknown. Epileptologists and epilepsy scientific societies should make greater efforts to work jointly with Wikipedia to convey more accurate and up-to-date information about epilepsy.
维基百科是全球医疗保健专业人员和普通公众最常访问的健康信息来源。我们旨在评估在意大利维基百科上搜索与癫痫及其治疗相关文章的互联网用户的信息寻求行为。通过页面浏览量分析，我们评估了2015年1月1日至2017年10月31日期间意大利维基百科上关于癫痫、癫痫综合征、发作类型和抗癫痫药物（AEDs）的文章的总月浏览量和平均月浏览量。我们将关于癫痫的文章的浏览量与关注阿尔茨海默病、偏头痛、多发性硬化症（仅该文章除外）、晕厥和中风的文章的浏览量进行了比较，并针对疾病的粗略患病率对所有结果进行了调整。意大利维基百科上关于癫痫的文章经调整后的浏览量高于其他神经系统疾病的文章。关于发作类型浏览量最高的文章是关于强直阵挛发作、典型失神发作、强直惊厥发作和阵挛惊厥发作的。关于癫痫综合征最常访问的文章是关于颞叶癫痫和伦诺克斯-加斯东综合征的。关于抗癫痫药物最常浏览的文章是关于丙戊酸、卡马西平和左乙拉西坦的。维基百科搜索似乎更多地反映了患者对癫痫的恐惧和担忧，而非其实际的流行病学情况。在线搜索的最终原因尚不清楚。癫痫学家和癫痫科学协会应更加努力地与维基百科合作，以传达关于癫痫更准确和最新的信息。
