Solomon Patricia, O'Brien Kelly Kathleen, Nixon Stephanie, Letts Lori, Baxter Larry, Gervais Nicole
1 School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.
2 Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada.
J Int Assoc Provid AIDS Care. 2018 Jan-Dec;17:2325958218759210. doi: 10.1177/2325958218759210.
People living with HIV may experience disability which is episodic in nature, characterized by periods of wellness and illness. The purpose of this longitudinal qualitative study was to understand how the episodic nature of HIV and the associated uncertainty shape the disability experience of older adults living with HIV over time. Fourteen men and 10 women who were HIV positive and over 50 years (mean age: 57 years; range: 50-73) participated in 4 interviews over 20 months. Longitudinal analyses of the transcribed interviews identified 4 phenotypes of episodic disability over time: decreasing, increasing, stable, or significant fluctuations. Although all participants experienced uncertainty, acceptance and optimism were hallmarks of those whose phenotypes were stable or improved over time. Understanding a person's episodic trajectory may help to tailor interventions to promote stability, mitigate an upward trajectory of increasing disability, and increase the time between episodes of illness.
感染艾滋病毒的人可能会经历具有发作性的残疾，其特点是有健康期和患病期。这项纵向定性研究的目的是了解艾滋病毒的发作性本质以及相关的不确定性如何随着时间的推移塑造感染艾滋病毒的老年人的残疾经历。14名男性和10名女性艾滋病毒呈阳性且年龄超过50岁（平均年龄：57岁；范围：50 - 73岁）在20个月内参与了4次访谈。对转录访谈的纵向分析确定了随时间变化的4种发作性残疾表型：下降型、上升型、稳定型或显著波动型。尽管所有参与者都经历了不确定性，但接受和乐观是那些表型随时间稳定或改善的人的标志。了解一个人的发作轨迹可能有助于调整干预措施，以促进稳定性，减轻残疾上升的轨迹，并增加疾病发作之间的时间间隔。
