School of Nursing, Columbia University, New York, NY 10032, USA.
School of Nursing and Department of Biomedical Informatics, Columbia University, New York, NY 10032, USA.
J Am Med Inform Assoc. 2018 Jun 1;25(6):759-771. doi: 10.1093/jamia/ocy006.
This integrative review identifies convergent and divergent areas of need for collecting and using patient-generated health data (PGHD) identified by patients and providers (i.e., physicians, nurses, advanced practice nurses, physician assistants, and dietitians).
A systematic search of 9 scholarly databases targeted peer-reviewed studies published after 2010 that reported patients' and/or providers' needs for incorporating PGHD in clinical care. The studies were assessed for quality and bias with the Mixed-Methods Appraisal Tool. The results section of each article was coded to themes inductively developed to categorize patient and provider needs. Distinct claims were extracted and areas of convergence and divergence identified.
Eleven studies met inclusion criteria. All had moderate to low risk of bias. Three themes (clinical, logistic, and technological needs), and 13 subthemes emerged. Forty-eight claims were extracted. Four were divergent and twenty were convergent. The remainder was discussed by only patients or only providers.
As momentum gains for integrating PGHD into clinical care, this analysis of primary source data is critical to understanding the requirements of the 2 groups directly involved in collection and use of PGHD.
本综合回顾确定了患者和提供者(即医生、护士、高级执业护士、医师助理和营养师)在收集和使用患者生成的健康数据(PGHD)方面的共同需求和不同需求。
系统搜索了 9 个学术数据库,以寻找 2010 年后发表的报告患者和/或提供者将 PGHD 纳入临床护理的需求的同行评审研究。使用混合方法评估工具评估了研究的质量和偏差。对每篇文章的结果部分进行编码,以归纳出主题,这些主题用于分类患者和提供者的需求。提取了明确的主张,并确定了趋同和分歧的领域。
符合纳入标准的有 11 项研究。所有研究的偏倚风险均为中度至低度。出现了三个主题(临床、后勤和技术需求)和 13 个亚主题。提取了 48 个主张。其中 4 个存在分歧,20 个存在趋同。其余的只被患者或只被提供者讨论过。
随着将 PGHD 整合到临床护理中的势头增强,对主要原始数据的这种分析对于理解直接参与 PGHD 收集和使用的 2 组的要求至关重要。