患者对乳腺癌放射治疗的看法：初始恐惧、期望与现实的对比。
The patient's perspective on breast radiotherapy: Initial fears and expectations versus reality.
机构信息
Department of Radiation Oncology, University of California at Los Angeles, Los Angeles, California.
Department of Medicine, University of California at Los Angeles, Los Angeles, California.
出版信息
Cancer. 2018 Apr 15;124(8):1673-1681. doi: 10.1002/cncr.31159. Epub 2018 Feb 26.
BACKGROUND
Although the efficacy and toxicity of breast radiotherapy (RT) has been studied extensively, to the authors' knowledge little is known regarding the patient's perspective on the modern breast RT experience. To better inform future patients and providers, the authors explored patient perceptions of their RT experience.
METHODS
Consecutive patients who were free of disease recurrence and who had been treated between 2012 and 2016 were surveyed regarding their original fears, how short-term and long-term toxicities compared with initial expectations, and how pretreatment beliefs concerning RT compared with the actual experience.
RESULTS
A total of 502 patients were surveyed, with a response rate of 65% (327 patients). The median patient age and posttreatment follow-up was 59 years and 31 months, respectively. Approximately 83% of patients (269 patients) underwent breast conservation therapy. Although approximately 68% of patients (221 patients) endorsed that they initially had little to no knowledge regarding RT, approximately 47% (152 patients) reported that they had heard frightening stories. Approximately 2% of patients (6 patients) agreed that the negative stories they previously heard about RT were actually true. Approximately 92% of patients treated with breast conservation (247 patients) and 81% of patients who underwent mastectomy (47 patients) agreed with the statement "If future patients knew the real truth about RT, they would be less scared about treatment." Approximately 83% (272 patients) and 84% (274 patients), respectively, of all patients reported the overall severity of short-term and long-term side effects to be better than or as expected.
CONCLUSIONS
Breast RT is associated with misconceptions and fears. Patients' experiences with modern breast RT appear to be superior to expectations, and the majority of patients in the current study agreed that their initial negative impressions were unfounded. Cancer 2018;124:1673-81. © 2018 American Cancer Society.
背景
尽管已经广泛研究了乳腺癌放射治疗（RT）的疗效和毒性，但据作者所知，对于患者对现代乳腺癌 RT 体验的看法却知之甚少。为了更好地为未来的患者和提供者提供信息，作者探讨了患者对其 RT 体验的看法。
方法
对 2012 年至 2016 年间无疾病复发且接受治疗的连续患者进行了调查，内容涉及他们最初的恐惧、短期和长期毒性与最初预期的比较，以及与实际 RT 体验相比，患者对 RT 的治疗前信念。
结果
共调查了 502 例患者，应答率为 65%（327 例）。患者的中位年龄和治疗后随访时间分别为 59 岁和 31 个月。约 83%的患者（269 例）接受了保乳治疗。尽管约 68%的患者（221 例）表示他们最初对 RT 几乎一无所知，但约 47%（152 例）表示他们曾听说过可怕的故事。约 2%的患者（6 例）同意他们之前听到的关于 RT 的负面故事实际上是真的。约 92%接受保乳治疗的患者（247 例）和 81%接受乳房切除术的患者（47 例）都同意“如果未来的患者了解 RT 的真实情况，他们对治疗的恐惧就会减少”这一说法。分别约 83%（272 例）和 84%（274 例）的所有患者报告短期和长期副作用的总体严重程度好于或与预期一致。
结论
乳腺癌 RT 与误解和恐惧有关。现代乳腺癌 RT 的患者体验似乎优于预期，且当前研究中的大多数患者都同意他们最初的负面印象是没有根据的。癌症 2018;124:1673-81。©2018 美国癌症协会。
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